Guidance for the development, production and review of information to support UK population screening programmes.
Appendix A: Overview of screening information development (flowchart)
This guidance provides the 4 UK countries with best practice in terms of developing public information resources such as leaflets to support the national screening programmes.
Their definition of a ‘personal informed choice’ is:
“A decision made to accept or decline a screening test based on access to accessible, accurate, evidence-based information covering:
- the condition being screened for
- the testing process
- the risks, limitations, benefits and uncertainties
- the potential outcomes and ensuing decisions
There should also be the opportunity to reflect on what the test and its results might mean to the individual. Support must be available to potential participants to help them make a decision based on their individual context (which may include discussion of some aspects of the information as relevant to that person).”