• 22Apr

    Transforming Care After Treatment (TCAT) – New approaches to partnership working for those affected by cancer- a case study from Scotland – Case Study Session: PIF Annual Conference 2016

    At the PIF Annual Conference on Wednesday 25 May 2016 delegates will be able to choose to attend two of six Case Study Sessions on a variety of topics, that have involved partnership working to improve healthcare information and support.

    We will be showcasing each Case Study Session over the next month.  Below is an overview of the Case Study that will be presented by Macmillan Cancer Support and the Health and Social Care Alliance Scotland (the ALLIANCE).

    You can find out more details about the conference and how you can attend here: www.pifonline.org.uk/2016-conference

    Transforming Care After Treatment (TCAT) – New approaches to partnership working for those affected by cancer- a case study from Scotland

    Transforming Care After Treatment (TCAT) is a five year programme in Scotland sponsored by Macmillan Cancer Support, which is attempting to transform the support provided to people affected by cancer after treatment has been completed or is being maintained.

    People affected by cancer tell Macmillan that on the whole excellent care and support is received during the diagnosis and the treatment of their cancer but they often feel abandoned after treatment has finished with a significant number of unmet needs from the physical to the psychological, the financial to the lack of clear information about community supports and so on.

    The programme aims to support the design, testing and evaluation of new approaches with the successful ones being rolled out widely. Central to the success of this programme has been the role of people affected by cancer playing a pivotal role in the design of new services, overseeing progress and holding the programme board to account to ensure that the board is meeting the needs as identified by service users.

    The Case Study Session at the PIF Annual Conference 2016 will present the learning to date from the programme, to place the service user at the centre of any redesign of services locally, regionally and nationally.

    Presenter biographies:

    Gordon McLean – National Programme Manager for the Transforming Care After Treatment (TCAT) project, Macmillan Cancer Support
    Gordon completed his nurse training in 1992, following which he specialised in the area of palliative care. He worked across a number of settings including within the field of HIV/AIDS and Ceutzfeldt Jakob Disease (CJD). For the last decade he has focussed on service improvement within healthcare systems within cardiac and cancer services both regionally and nationally.

    Since 2013 Gordon has been the National Programme Manager for the Transforming Care After Treatment programme working for Macmillan Cancer Support. Gordon is leading a programme of work to improve the services and support provided to those who have been affected by cancer after they have completed their treatment. This is a 5 year programme with a core focus of the programme being to ensure that people affected by cancer are at the centre of developments and partnerships to test new approaches to service delivery, which could be rolled out widely across Scotland.

    Simon Malzer – Service User Involvement Manager, Macmillan Transforming Care After Treatment Programme, Health and Social Care Alliance Scotland (the ALLIANCE)
    Simon has a background in community development, social care management and third sector organisational development. He has worked across a range of settings to encourage and facilitate the influence of people who use health and social care services on how those services develop and operate. Simon was involved in the setting up of the Hostels Action Group for homeless people
    in Glasgow in the 1980s – one of the first independent user voice organisations – and his work on person-centred change processes in social care organisations has resulted in fresh approaches to risk management that put individuals at the centre.

    As User Involvement Manager with Macmillan’s Transforming Care After Treatment programme, Simon is working with people who have experience of cancer, whether as patients or carers, to promote partnership working with professionals in health settings as well as local authorities. The work is locality based as well as national across Scotland and the TCAT Cancer Experience Panel, the national group of patients and carers who support the development of user voice within TCAT, is setting new benchmarks for user voice in this field.