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Be clear with those you are involving on your requirements and expectations of their involvement

Community activityExplain the aims of the research and your expectations for the project. Be clear what influence they will have, and the benefits of being involved

  • Be clear about the time commitment
  • Be clear about what they can expect from you – for example, in terms of accessibility, training or payment
  • Where appropriate, develop terms of reference for any type of advisory group, steering group or committee

Keep users fully informed about what and why they are being asked to help. This could even involve a job or role description.

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How have others done this?

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Natalie talks about how health information has supported her