A new breast cancer risk infographic, Breast Cancer Care
Name of resource: Breast cancer risk infographic
Producing organisation and contact details: Breast Cancer Care
Date of publication: March 2015
Resource format: Downloadable pdf on website and hard copy. We are also planning an audio animation.
Any quality marks applying to resource (Information Standard, HON Code, etc): Information Standard.
What is the purpose of the resource and who is it aimed at?
To try to explain the basics about risk factors for breast cancer in an accessible and clear way. It is aimed at anyone wanting to know about breast cancer risk, for which the theoretical audience is all women. In practice it is likely to be women with a particular interest in this subject area. For example, they’ve looked it up on the internet or are visiting a health facility.
How did you plan the resource?
We have a cross-organisational Patient Information Needs Group at Breast Cancer Care where we identify and talk about how to fill gaps in our patient information for people affected by breast cancer.
Through anecdotal feedback via callers to our breast cancer specific Helpline as well as personal and professional observation, the group had been aware for some time that our risk information is hard to understand. We therefore decided to pilot an infographic presentation (click here) of the information to see if we could make it any more accessible in this format.
We then included the infographic poster in focus group testing with nearly 100 people with lower literacy, which we commissioned from the Community Health Learning Foundation. It was not well received. People still found the information hard to understand and frightening.
We then took the detailed findings from the research into a revision of the infographic, which is now much simpler and includes information on how you can help to protect your own health by being breast aware.
We aim in the future to retest this revised infographic with users. In the meantime we will be collecting ad hoc feedback.
How did you consult with health professionals or experts, and who did you work with?
We produced the original booklet from which we took the information in accordance with our editorial policy so that production involved obtaining feedback from appropriate experts on both the draft text and the pictures.
What kind of evidence did you use to develop any clinical or medical content?
The academic reference list and clinical feedback used in producing our patient information booklet Breast cancer in families
What were your main distribution channels?
Our website and via events run by our Breast Health Promotion team
Why did you choose these particular methods?
We wanted to supplement our website information with an infographic as a pilot for further resources of this type.
What worked particularly well during this project?
Having confidence in the original clinical material on which this was based as well as the detailed focus group feedback from a prime target audience.
What were the main challenges and how did you overcome them?
The urge to include a lot of information was hard to resist and indeed not resisted well in the first iteration. However, the research clearly pointed to a ‘less is more’ strategy so all involved felt encouraged to move in this direction, putting aside previous concerns.
If you could give one top tip to other information producers, what would it be?
Keep it simple.