About the PIF Toolkit
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Welcome to the PIF Toolkit!
In 2014 we began a process of working with health information producers to identify the key steps involved in creating health information that works, and to create this Toolkit – providing practical help and support for creating health information that works
During our journey we spoke to over a hundred people about their work, conducted a review to identify the evidence on the key components of creating high quality health information, and worked with our membership to translate the findings into practical guidance to support your work.
The Toolkit brings together best practice guidance (Best Practice for creating health information that works (Jan 2016)), with practical resources, and the evidence behind the guidance statements (What does good health information look like October 2014). It contains case studies from information producers sharing how they have approached the key steps contained within the guidance.
The guidance and resources are organised into four themes:
- Create accurate and evidence based health information
- Communicate information clearly
- Ensure information has impact and relevance
- Involve users in creating information
It is a work in progress, so please if you would like to share your work, want to suggest a resource we should include, spot any gaps, or disagree with any of our guidance – do get in touch.
In developing the best practice, identifying the practical tools that already exist to support information producers, and creating new PiF resources for the Toolkit we have worked with:
- Pippa Coulter – a specialist health editor at Bupa and freelance consultant. Pippa has used her considerable experience in producing evidence-based and accurate information resources to develop the content for the creating accurate and evidence based health information section of this Toolkit.
- Jonathan Berry and the Community Health and Learning Foundation are leading experts in the field of health literacy and worked with us to develop the content for the clear communication section of the Toolkit.
- Grant Riches, a communications agency with vast experience in the field of health and social care, carried out the literature review that supported the development of the Toolkit’s best practice statements and key steps.They also worked with us to develop the section of the Toolkit that looks at ensuring information has impact and relevance.
- Emily Newsom-Davis – a consumer health information professional for the last 14 years with expertise in clear communication and user testing. Emily has worked with us to create the content on this Toolkit on involving users in creating health information.
And many thanks to everyone who has contributed their time and expertise along the way:
- To all who attended our development events in March and May 2014 and who contributed to our surveys in autumn 2014
- To all the organisations who’ve contributed case studies to the Toolkit
- BMA Library, and especially Richard Jones and Jacky Berry
- Polly Kerr, Bupa
- Helen Leech, MIND
- Lisa Cousins, Motor Neurone Disease Association
- Richard Scholey, Terrence Higgins Trust
- Sandy Forsyth, British Liver Trust
- Michelle Harrison, PRESCQIPP
- Hannah Bridges, HB Health Comms
- Sarah James, World Cancer Research Fun
- Hadrian Collier, Byline Communications
- Bren McInerney, patient advocate
- Nic Wray, British Tinnitus Association
- Andre Tomlin, Minervation
- Katrina Glaister, Salisbury NHS Foundation Trust
- Kate Betteridge, Neil Betteridge Associates
- Kate Arnold, Macmillan Cancer Suppor
- Sarah Greening, Health Education West Midlands
- Aneta Kolatorowicz, Guys & St Thomas NHS Foundation Trust
- Barry Bolton, NHS Choices
- Victoria Thomas, NICE
- Sarah Roberts, The Information Standard
- Hilary Cole, EMIS
- Wayne Middleton, Luto
- Stephanie Hughes, Bupa
- Beth Murphy, MIND
- Amny Bowen, MS Trus
- John Isitt, Resonant Media
- Karen O’Rourke, Northumberland, Tyne and Wear NHS Foundation Trust
PiF is an organisation that exists to support the work of people who produce and provide health information for patients and the public, for more information about us and our services please visit the about PiF page.