There is a strong evidence base to suggest that changes to the legislation could improve the usefulness and acceptability of patient information about medicines. An Expert Advisory Group on Patient & Public Engagement and the Commission on Human Medicines (CHM) have reviewed the emerging evidence and have advised on the key elements on which it…
A new strategy that will strengthen Welsh language services to meet the care needs of Welsh speakers, their families and carers has been launched. Deputy Minister for Children and Social Services, Gwenda Thomas said “Many Welsh speakers can only express their care needs effectively through the medium of Welsh. For example, people suffering from dementia and people who have a stroke often lose a grasp of their second language. Children under the age of five can often only speak their first language. The aim of the framework is to improve the quality of care by ensuring those who provide services recognise that it is their responsibility to respond to people’s need or wish to be cared for through the medium of Welsh.”
Most parents frequently rely on the Internet for paediatric health information, and yet the content and quality of information can vary greatly from website to website. According to new research in the US websites provided by academic institutions offer the most reliable pediatric health information, and commercial-sponsored websites, the least. In general, disease summary and diagnosis information is more likely to be correct on the Internet than information about the cause and prognosis for a disease. In addition, there was a lot of overlap of information among different websites, such as text, photos and diagrams that appeared to be directly copied from one website to another. This could be very misleading for patients if the information is incorrect, as was often the case.
Macmillan Cancer Support is giving special training to pharmacists so patients can talk through any problems that may have arisen as a result of having cancer. The team of Boots pharmacists do not only help with advice about medication but can also point sufferers or their carers in the right direction for information or financial and emotional advice. So far, more than 500 pharmacists working at Boots have received the training.
This patient leaflet from the NHS Enhanced Recovery Programme has been designed, tested and evaluated by patients for patients in order to give practical step by step advice to anyone prior, during and after surgery. It can be used alongside existing patient information to support key messages and encourage patients to take an active role in their preparation and recovery from surgery. The information in the leaflet is designed to reduce uncertainty and increase confidence.
This report is designed to assist the NHS in Wales in delivering high quality and accessible services to people with sensory loss in Wales. The report steering group identified three main areas where services needed to improve, including communication – ensuring information (both written and face-to-face) is accessible and delivered in a way that meets the needs of people with sensory loss. Of specific note was the need to improve communication around access to appointments.
Macmillan Cancer Voices Network connects people affected by cancer with opportunities to get involved
The Cancer Voices Network is a matching service that puts in contact people affected by cancer with projects and ‘opportunities’ to get involved in cancer services and organisations. An opportunity can range from completing a survey about their cancer care, to joining a local NHS representative patient group or contributing to a national campaign. The Cancer Voices Network is a bit like a job or dating website where people are matched by preference, experience and location. As a professional, group or organisation you can receive email alerts of opportunities and add an opportunity for people affected by cancer.
Individuals with impaired vision may have great difficulty in accessing and negotiating healthcare services. In this article in the BMJ, the authors discuss the difficulties that visually impaired patients encounter in the healthcare environment and ways in which problems may be overcome. They make a number of key points and recommendations including that people with visual impairment are likely to have limited access to information and healthcare facilities and that taking time to communicate effectively about access, facilities, diagnosis, and management plans is necessary; communications, in visual or audio format, should be tailored to individuals’ needs.