The objective of the research was to explore the perspective and experiences of disabled young people with degenerative conditions as they face significant medical interventions and engage in decision-making processes. Researchers found a complex and diverse picture of decision making. How each young person framed their decision was important. Recognizing this diversity and the importance of emerging themes, such as living a normal life, independence, fear of decisions viewed as ‘irreversible’ and the role of parents and peers in decision making highlights that, there are clear practice implications including, active practitioner listening, sensitivity and continued holistic family working.
In November 2011, the Royal College of Physicians hosted a workshop to explore issues surrounding
shared decision making (SDM) in clinical practice. Their report, Shared decision making, captures some of the learning from the event and outlines key themes discussed and debated on the day. The workshop was planned in partnership with the Health Foundation and The King’s Fund. The RCP invited key theoreticians in the field of shared decision making, and leaders in national programmes delivering partnership approaches to care, plus representatives from the medical royal colleges and specialist societies, to explore what this means both for patients, and for clinicians and their practice.
This article in this weeks BMJ, discusses why shared decision making is important and highlights some examples of best practice. The authors explore best practices for implementation, including patient decision aids and short decision support tools, and simple strategies for individual clinicians and debate what the medical profession can do.
The NHS Right Care shared decision making programme has announced the new contractors for the forthcoming Shared Decision Making Programme delivery. It is hoped that delivery of the elements required within these contracts should result in a step change in the delivery of shared decision making. The work includes the development of patient decision aids and embedding shared decision making in routine NHS systems. Right Care have also published an Essential Reading series on shared decision making.
More than 40 National Voices members were featured in The Times this week calling for the government to strengthen the Health & Social Care Bill on service user involvement. The letter to the Times highlighted the importance to patients of direct patient involvement in their care – shared decisions about the most appropriate treatments, personalised care planning and support for people to manage chronic conditions. You can read the full text of the letter in the web site.