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  • 13May

    The patients behind the clicks: research for the NHS App

    The NHS App is an important element of a digital first healthcare system as outlined in the new NHS Long Term Plan. In this blog, Josh Dresner, user researcher on the NHS App project, describes how patients and staff have informed the development of the app. https://digital.nhs.uk/blog/transformation-blog/2019/the-patients-behind-the-clicks-research-for-the-nhs-app  

  • 25Mar

    Being Inclusive in Public Involvement (PI) in Health Research

    In this article, published by Equality, Diversity and Inclusion in Science and Health (EDIS), Dr Bella Starling (Director of Public Programmes at Manchester University NHS Trust) shares her experience and explains the rationale and process behind the creation of the NIHR INVOLVE guidance ‘Being Inclusive in Public Involvement (PI) in Health Research. Things to think…

  • 18Feb

    The many shades of co-produced evidence

    Co-production of evidence is a process by which evidence is generated by the equal and reciprocal participation in research activities by academic and other partners. This briefing paper by the Carnegie UK Trust teases out the challenges and opportunities around co-producing evidence appropriate to participatory social policy and practice, and increasing people’s control within communities and…

  • 11Feb

    Public Co-Applicants in Research – Guidance on roles and responsibilities

    This guidance was developed jointly by the NHS R&D Forum, the Health Research Authority and INVOLVE.  It is intended to help: Researchers wanting to include a public co-applicant in a study Public contributors wanting to become a co-applicant Research staff who coordinate public involvement activities or advise on funding applications Those working in or with research…

  • 25Oct

    Shared Decision Making: essential but hard to measure

    Richard Lehman, Professor of the Shared Understanding of Medicine at the University of Birmingham, reflects on the latest Cochrane evidence on shared decision making and what might be needed to see it become a reality in all health care settings. Shared decision making is a good thing. Here is how the authors of an updated Cochrane Review…

  • 26Jul

    Patients’ roles and rights in research

    Excerpts from the editorial piece in the BMJ 2018; 362 doi: https://doi.org/10.1136/bmj.k3193 Full partnership with patients is essential to any modern research enterprise Patient and public involvement in research is becoming a mainstream activity thanks to recognition by everyone in the research process from funders and regulators to conference organisers and publishers that it helps them do a better…

  • 26Jul

    Wellcome launches social media health info research probe

    Health improvement foundation wants to find out how influential – and how authentic – information and guidance is for parents on platforms like Facebook, Instagram, and Whatsapp. Charitable foundation Wellcome has launched a research programme to investigate the spread of health information on social media, and the impact that fake health news might have on the decisions people…

  • 19Jul

    How Online Communities of People With Long-Term Conditions Function and Evolve

    How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities Self-management support can improve health and reduce health care utilization by people with long-term conditions. Online communities for people with long-term conditions have the potential to influence…

  • 12Jul

    Electronic Health Literacy Across the Lifespan: Measurement Invariance Study

    Electronic health (eHealth) information is ingrained in the healthcare experience to engage patients across the lifespan. Both eHealth accessibility and optimization are influenced by lifespan development, as older adults experience greater challenges accessing and using eHealth tools as compared to their younger counterparts. The eHealth Literacy Scale (eHEALS) is the most popular measure used to…

  • 12Jul

    National Standards for Public Involvement in Research

    The NIHR Central Commissioning Facility (CCF) has recently published its PPI highlights report for 2017-18. This year, they have opted to report against the new national standards for public involvement. The report covers different aspects of their work in line with the 6 standards: inclusive opportunities, working together, support and learning, communications, impact and governance. The aim of the standards…

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