NICE has provided its first piece of advice on the design of a patient preference study. It aims to encourage more companies to seek its advice on the development of these studies which are designed to capture patients’ views so they can be used in the clinical development programmes for new treatments. The pilot with Novartis looked…
BMJ Open have published a systematic review that identifies studies of existing instruments available for clinicians to record overall patient preferences and priorities for care, suitable for use in routine primary care practice in patients with multimorbidity. The authors searched MEDLINE, EMBASE and Cochrane databases. The search identified 189 potential studies of which 6 original…
We’ve published a new PiF member of the month article for September 2015. Jane Simkin, Macmillan Patient Information Project Lead at Dorset County Hospital NHS Foundation Trust, outlines her work to open an information space at the hospital, including mapping what other information resources are available, and how patients would prefer to receive health information. The findings of her…
A paper has been published in Health Expectations looking at the extent to which healthcare providers involve patients in the decision-making process during consultations. Researchers from Quebec systematically reviewed studies that used the OPTION instrument (Observing Patient Involvement in Decision Making) across a range of clinical contexts, including different health professions and lengths of consultation.…
Frequent Internet users want significantly more information and decision making than infrequent users
The Internet is bringing fundamental changes to medical practice through improved access to health information and participation in decision making. However, patient preferences for participation in health care vary greatly. Promoting patient-centered health care requires an understanding of the relationship between Internet use and a broader range of preferences for participation than previously measured. The…
In recent decades, rapid advances in the biosciences have delivered an explosion of treatment options. This is good news for patients, but it makes medical decision making more complicated. Most critically, an accurate medical diagnosis is no longer sufficient to identify the proper treatment. Just as important is an accurate preference diagnosis. Every option for treatment (a term used broadly to include procedures, tests, and even watchful waiting) has a unique profile of risks, benefits, and side effects. Doctors, generalists as well as specialists, cannot recommend the right treatment without understanding how the patient values the trade-offs. Regrettably, patients’ preferences are often misdiagnosed. The authors of the article outline a method for making better preference diagnoses.
Misdiagnosing patients’ preferences may be less obvious than misdiagnosing disease, but the consequences for the patient can be just as severe. Patients’ preferences matter: stop the silent misdiagnosis, a report out this week from the Kings Fund, outlines the scale of the problem, showing that when they are well informed, patients make different choices about treatment and that what patients want often differs from what doctors think they want. The central recommendation is that the NHS must measure and report the incidence of preference misdiagnoses. Also, both doctors and patients will need better tools and information.
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