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  • 10Jul

    Communicating when naked: lessons learnt as a patient

    In this article Helen Osborne, author of Health Literacy from A to Z, shares some of the lessons she learnt during her time as a patient. As an occupational therapist and health literacy consultant she felt in charge of conversations no matter which professional ‘hat’ she was wearing. But when a routine mammogram turned out…

  • 10Jul

    Prehabilitation for people with cancer

    PIf members, Macmillan Cancer Support has published new guidance for prehabilitation within the management and support of people with cancer. Following a review in 2017 it was agreed prehabilitation should be incorporated into routine cancer care and there was a need to develop principles and guidance for health professionals. Macmillan has developed the guidance in partnership with…

  • 10Jul

    Identifying good online information about cancer

    New guidance has been published to help people identify good online information about cancer. The JAMA Network guidance includes four key signs of trustworthy content, for example transparency about the identity and qualifications of information providers, and four warning signs of bad information. It also outlines what information is available online, which information can be…

  • 11Mar

    Can more be done to exploit health information commons and empower people with cancer?

    With over 620 UK cancer charities offering guidance and support to those affected by cancer, information abundance can be almost as much of an issue as information scarcity. In this blog, NESTA explore ways that collective intelligence can enable citizens to be active decision makers in their treatment and health outcomes.

  • 28Jan

    Cancer cliches to avoid: I’m not ‘brave’

    This BBC article highlights a survey by Macmillan Cancer Support which found that for some people with cancer words such as ‘Fighter, warrior, hero’ are seen as inappropriate rather than uplifting. The UK poll of 2,000 people who have or had cancer found “cancer-stricken” and “victim” were also among the least-liked terms. Calling a person’s cancer…

  • 27Sep

    Help spread the word about cancer feedback

    NHS England are asking all colleagues and partners to help spread the word, right through autumn, about the importance of hearing ALL voices in feedback about cancer services. The push is designed to coincide with the sending out of questionnaires for the national Cancer Patient Experience Survey to an invited sample of cancer patients from October. …

  • 27Sep

    What information do cancer patients want and how well are their needs being met?

    The first study to determine the information needs of cancer patients in Singapore has been published: What information do cancer patients want and how well are their needs being met? The goal of this study is to determine the type of information cancer patients need and to measure the extent to which these information needs…

  • 2Aug

    Experience of NHS cancer care still mostly positive, shows survey

    The experience of cancer patients in England remains generally positive, according to responses from more than 69,000 people who took part in this year’s National Cancer Patient Experience Survey. Findings from the survey, which is carried out by Quality Health and managed by NHS England’s Insight & Feedback team, have been published on the survey website. …

  • 20Jun

    Who cares for patients after treatment is over?

    This article, in Cancerworld, looks at how specialists feel responsible for their patients, but lack time to offer long-term care. Patients feel abandoned as their treatment ends, but lack resources to seek the care they need. GPs lack confidence to deal with cancer-related issues, and feel it is not their job. “There needed to be…

  • 16Jan

    Cancer Research UK answer most frequently googled health question in 2017

    A new blog from Cancer Research UK explores what happens when you type ‘what is cancer?’ into Google. According to the blog, Google report this questions as the most frequently asked health questions, by users from the UK, on the search engine in 2017. The author was presented with 260,000,000 results when she typed those…

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