This article, published in PharmaPhorum, explores how clinical trials for treatment of Parkinson’s disease, and other conditions, can be a rollercoaster of hopes, frustration and disappointment.
Natasha Ratcliffe, Research Involvement Manager at Parkinson’s UK, highlights how collaboration is key to designing the robust, relevant studies needed to move forward.
Patient involvement should be at the heart of all the work that an organisation is doing. “They are the experts of living with the condition and know what it is like day to day. They know what an improvement is, so understanding what is meaningful to them is vital”