• 22Apr

    So what is MND, anyway? – PIF Best Poster Competition Entry 2016

    At the PIF Annual Conference on Wednesday 25 May 2016 we will be holding our Best Poster Competition.  Entries to the competition will demonstrate partnership working to improve healthcare information and support.

    The best judged poster on the day, as voted for by delegates, will win a prize. Over the next few days we will be showcasing the entries to the competition. We start below with a submission from the MND Association.

    You can find out more details about the conference and how you can attend here: www.pifonline.org.uk/2016-conference

    So what is MND, anyway?

    Relating to: our publication So what is MND, anyway? our redeveloped guide for young people aged 13-18 who are close to someone with MND. A visual, but detailed guide to help teenagers adjust, accept and learn to manage the impact of a diagnosis of MND in the family, with guidance on how to get support, especially if they become young carers. The publication is available as a printed book, a PDF and also a web app (our first exploration into online information specifically designed to work effectively on mobile technology).

    URL: you can view the new guide in PDF format at: www.mndassociation.org/ypinfo Please note: this page will be updated soon to include the new ‘web app’ version of the guide.

    Purpose of poster: how we sought age appropriate partnership work for input into the guide, including working with a school, as well as expert organisations.

     Partnerships used: An entire year group of an upper school, a teacher as project mentor, Winston’s Wish, the online team at Carer’s Trust (who host the young carer forums, Babble and Matter) and a group of former young carers (throughout development).

     Poster imagery: commissioned illustrations for the guide, plus potential for additional photography

     Development process: Information Standard members, so evidence based, user tested and expertly reviewed

    Evaluation: as the guide is launching in next couple of weeks, evaluation for May will rely on early post launch feedback, initial send outs, traffic to new supporting web pages and test/review phase feedback.

    User engagement: We can draw supporting material from in-depth interviews with the young carers who assisted and from a survey conducted with the school who supported during initial gathering of expectations and with user testing.

    Presenter:         Kaye Stevens,  Care Information Manager
    Organisation:   MND Association