Involving Users in Developing Health Information (London) - Wed 17 May 2017

PIF is delighted to be holding an event on Involving Users in Developing Health Information, on Wednesday 17 May 2017, in London.

The event will share practical case studies and learning, and will support participants to consider:

  • Understanding user needs
  • How to involve users at each step of information resource development
  • How to involve disadvantaged groups, and/or go beyond talking to the most engaged users
  • Taking a co-production approach
  • Different methods for engaging and seeking feedback from users

PIF's events are a great opportunity to network with others working in the field of health information and support.  A dedicated networking session will encourage delegates to share how you involve users and what challenges you face.

Attending the day will provide you with a great opportunity to make connections and build new partnerships to drive your work and projects forwards.

Stay up-to-date with the latest event news via Twitter @PiFonline and the conference hashtag #PIFinvolving.

Draft Agenda

9.30 – 10.00    Registration and networking

10.00 – 10.50 Session 1: Setting the context

  • Welcome Wayne Middleton, Non-Executive Director, PIF; Chief Executive, Luto
  • A taxi from Bridlington - lessons from people with heart failure Professor Theo Raynor Professor of Pharmacy Practice, Leeds University; Co-Founder and Academic Advisor, Luto

Theo will set the context for the event, sharing recent work using Experience Based Co-Design (EBCD) in the development of information for people with heart failure. His presentation will address how involving users is not just the right thing to do – it makes a real difference; and how 'expert’ patients and ‘real’ patients both have a role to play in developing good information.

  • From a patient’s perspective Trishna Bharadia MS campaigner and expert patient

Trishna will share her experiences of accessing health information and being involved in the development of patient related services.

10.50 – 11.20  Speed networking (including refreshment break)

  • How do you involve users and what challenges do you face?

This is your opportunity to engage with other event attendees, and make useful connections that will help drive your activities and projects forwards.

11.20 – 12.50  Session 2: Involving users and understanding needs

  • Listening to young women's voices Kate Brian, Women’s Voices Lead, Royal College of Obstetricians and Gynaecologists

Kate shares the RCOG’s experiences of engaging young women in their work, to find out what they need to know and how to best get that information to them.

  • Consulting black, Asian and minority ethnic (BAME) communities about their information needs Claire Lucas, Information Services Manager, Alzheimer’s Research UK

Claire will share an Alzheimer's Research UK project that is seeking to understand  what health information will be useful and relevant to BAME communities. Her presentation will share their work to date including: focus groups – methodology, hurdles, limitations, results; iterative process of resource development and testing; progress to date and next steps.

  • Social media and online communities to understand user needs Deborah Wyatt, Director, talkhealth Partnership

Deborah will explore: what benefits can social media and online communities offer to patients and healthcare organisations; how can you identify the best communities to listen to and engage with; and what tools can you use to listen, engage and measure?

12.50 – 13.30  Lunch

13.30 – 14.30  Session 3: Co-production in developing health information

  • Groundswell’s approach to involving people experiencing homelessness Martin Burrow, Project Manager, Groundswell

Groundswell is a charity  that delivers a range of innovative projects which put homeless people at the heart of solutions to homelessness. The presentation will highlight three print items that Groundswell has co-produced that aim to empower people to take steps away from homelessness. It will explore the thinking behind them, the process in which they were created and their impact.

  • Co-designing MindWell Leeds – A Mental Health Information website: You want to do what? Alicia Ridout - Deputy Director and Nicola Gallear - Content Manager, MindWell

MindWell is an innovative website, completely co-designed with user groups across the city. From a blank sheet of paper to the current operational but still emerging site, we will take you on a journey through the ups and downs of collaborative design and content development, accessibility and engagement, creative approaches and linking performance measures.

14.30 – 14.45  Break

14.45 – 16.25  Session 4: A practical focus on user involvement methods

  •  Methods for seeking feedback Emily Newsom Davis, Consumer Health Information Specialist

A practical look at how to conduct surveys, interviews and focus groups to understand user needs and experiences, including a practical session on constructing good questions.

  • Voices and their value Diana Baxter, Head of Services, MS-UK

Diana will share the variety of approaches that MS-UK use to put those affected by MS at the heart of their work. In particular, her presentation will focus on their Virtual Insight Panel which has been instrumental in developing health information.

  • Using think-aloud protocols to understand public responses to health information Samuel Smith, Cancer Research UK Postdoctoral Fellow, Leeds Institute of Health Sciences

This practical session will aim to facilitate understanding of the pros and cons of using think-aloud protocols to evaluate and test health information. It will include a working example of how think-aloud interview data can be analysed and understood.

16.25 – 16.30

  • Close Wayne Middleton, Non-Executive Director, PIF; Chief Executive, Luto

Delegate rate

The event will cost £150+VAT for PIF members. You will need to be logged in to the website to see the PIF member rate.

The cost for non-members is £225+VAT, and this price includes a 1-year Individual membership of PIF.

If you have any queries about this event please contact:

We hope you can join us!

The PIF Team


Resource for London
356 Holloway Road
N7 6PA
Map and Directions

Date: 17 May 2017

Start Time: 9:30 am
End Time: 4:30 pm

Price: £270.00

Registration Details

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