Digital Health Information (London) - Tues 24 Jan 2017

PIF was delighted to hold an event on digital health information on Tuesday 24 January 2017 that explored:

  • How communities are using the web and social media to access health information
  • Writing for the web and designing digital content
  • Digital tools to help people take control of their health

The agenda and links to speaker's presentations are below.


10.00 – 10.15  Welcome and introductions

  • Mark Duman - Chair Non-Executive Director, PIF

10.15 – 11.55  Digital delivery of health information

This session will focus on the dissemination and sharing of digital health information

  • Meeting people where they are - providing health information in digital spaces

Tom Bishop and Eleanor Bowes, Mind

The mental health information pages on Mind’s website ( are visited by 5 million people each year. Tom and Eleanor explained how they use blogs, social media, engaging content and online communities to enable people to access the information they need, when they need it.

Meeting people where they are - providing health information in digital spaces, Mind Presentation

What is CBT?

Mental Health: in our own words

  • Understanding young adults’ online engagement and health experiences in the age of social media

Dr Gillian Fergie, University of Glasgow

Production and consumption of text, image and video content about both diabetes and common mental health disorders (CMHDs), by individuals and organisations, has become commonplace since the widespread adoption of social media.  Despite the increasing importance of these online spaces for health-related discussion, few studies have fully explored people’s experiences of drawing on social media content around either diabetes or CMHDs.  Through interviewing forty young adults, this study explored the multiple ways people engage with health-related content online. The findings of the study suggest diversity in users’ practices, often related to offline contexts, and highlight key opportunities for exploiting the potential of social media to support users as well as potential barriers to some individuals’ engagement.

Understanding young adults’ online engagement and health experiences in the age of social media, Gillian Fergie Presentation

  • Building a blogging and social media network for the dissemination of high quality evidence

André Tomlin, Minervation and National Elf Service

André shared the trials and tribulations of building an evidence-based blogging platform that helps people engage with important new research. If you want an introduction to blogging and social media that’s laced with terrible puns, this talk’s for you!

Building a blogging and social media network for the dissemination of high quality evidence, Andre Tomlin Presentation

National Elf Service video:

Mental Elf Mindfulness podcast:

  • Disseminating digital heath information

Michael Laffan and Kevin Robinson, British Lung Foundation

Michael and Kevin shared how the British Lung Foundation disseminate their digital health information and promote their online services to a growing audience.

Disseminating digital heath information, British Lung Foundation Presentation

12.10 – 12.55  Making video work for you and your service users Q&A panel session

You can find out more about our panel and their work on the links below.

13.35 – 15.10  Creating effective digital health information

This practical session will use case studies to share key skills for producing effective online information:

  • Developing online resources to meet user needs

Cassie Davis, CLIC Sargent

In 2015 CLIC Sargent developed a digital hub to help teenagers and young adults understand and cope with the impact of cancer on their personal relationships, sex and fertility. In this presentation Cassie Davis, CLIC Sargent’s Information Manager, talked through how it was created, and the successes and challenges along the way.

Developing online resources to meet user needs, CLIC Sargent Presentation

CLIC Sargent video 'Ask someone out':

  • Transforming your print into interactive power

Rosemary Plum, Script TV

Patient and family engagement is one of the biggest challenges in healthcare education. As the NHS looks for new ways to improve population health, provide a better experience of care and lower healthcare costs, we need to create different and innovative ways of promoting healthier lifestyles.

Audience research tells us that people are deeply influenced by the behaviour of those around them and what they watch in the media. Compared to the single one-size-fits-all direction of print, two-way engagement with digital media allows specific audiences to be targeted for the delivery of healthcare education that achieves greater emotional engagement.

The transition from print to interactive media allows you to maximize the use of today’s technology to cut across social boundaries to deliver quality, purpose and benefit for you and your patients.

From Print to Interactive Media, Rosemary Plum Presentation

  • A guide to creating online patient information for the uninitiated

Anneliese Levy, Freelance Health Information Writer and Researcher

Anneliese spent nearly a year working on a project to redevelop the patient and family web-pages at Anthony Nolan. This presentation takes you through everything she learnt on this project from user-testing and 'information architecture' to writing for the web. Hopefully this will help those who are just starting out in the online health information world.

A guide to creating online patient information for the uninitiated, Annelise Levy

  • ‘Just give me the facts and don't waste my time!’ - User testing and user panels in the development of the 'ESC Student' health information app

Dr Knut Schroeder, Expert Self Care  

Learn about Knut’s experiences of working with a user panel and conducting user testing to develop the 'ESC Student' app. With real life examples, he shared key learning points - and practical tips to take away.

User testing and user panels in the development of the ESC Student Health App, Knut Schroeder Presentation

15.25 – 16.25  Digital support for people to understand and manage their health

This session will explore how digital health information can support people to feel informed and in control of their health and wellbeing choices.

  • 15 years digital perspective on health empowerment

Lorenzo Gordon, Maldaba Ltd

Since 2002 Maldaba has partnered with organisations such as the NHS, UCL, Imperial College, King’s College London, the London School of Hygiene & Tropical Medicine, Brook and the Family Planning Association to deliver easy-to-use technology around healthcare.  Co-founder and director Lorenzo Gordon looks back on the projects of the last 15 years and examines the role digital has had to play in contexts such as contraception, self-harm, learning disabilities, primary care in Africa, healthcare research and supporting healthcare providers.

15 years digital perspective on health empowerment, Lorenzo Gordon Pesentation

My health guide video - Carl & his dad:

  • Are patients confused about .com? If so can PHRs help?

Bruce Elliott, NHS Digital; Louise Coghlin, PIF Advisory Group member and author 2017 PIF guide to personal health records

What are personal health records (PHRs)? How can – and could – they be of value to patients, carers and clinicians? How do they fit within the national strategy to 'use data and technology to transform outcomes for patients and citizens'? What opportunities and challenges do they provide for the future?

Are patients confused about .com, Bruce Elliott & Louise Coghlin Presentation

PIF's 2017 guide to Personal Health Records 'Learning from voices of experience': pif-phr-guide-2017

  • Quality of information in online discussion forums

Jennifer Cole, Royal Holloway

Online discussion forums provide huge opportunities for the dissemination and exchange of health information, but professional health providers are extremely cautious of peer-run and managed forums, due to concerns over the harm that could be caused by poor quality information. This talk presented research on how forums can help to signpost higher quality information and steer users away from more problematic posts and comments, using the US-based discussion site Reddit, and its Ebola discussion forum, as a case study.

Quality of information in online discussion forums, Jennifer Cole Presentation






We are sorry but registration for this event is now closed.

Please contact us if you would like to know if spaces are still available.