PIF was delighted to hold an event on digital health information on Tuesday 24 January 2017 that explored:
- How communities are using the web and social media to access health information
- Writing for the web and designing digital content
- Digital tools to help people take control of their health
The agenda and links to speaker's presentations are below.
10.00 – 10.15 Welcome and introductions
- Mark Duman - Chair Non-Executive Director, PIF
10.15 – 11.55 Digital delivery of health information
This session will focus on the dissemination and sharing of digital health information
- Meeting people where they are - providing health information in digital spaces
Tom Bishop and Eleanor Bowes, Mind
The mental health information pages on Mind’s website (www.mind.org.uk) are visited by 5 million people each year. Tom and Eleanor explained how they use blogs, social media, engaging content and online communities to enable people to access the information they need, when they need it.
- Understanding young adults’ online engagement and health experiences in the age of social media
Dr Gillian Fergie, University of Glasgow
Production and consumption of text, image and video content about both diabetes and common mental health disorders (CMHDs), by individuals and organisations, has become commonplace since the widespread adoption of social media. Despite the increasing importance of these online spaces for health-related discussion, few studies have fully explored people’s experiences of drawing on social media content around either diabetes or CMHDs. Through interviewing forty young adults, this study explored the multiple ways people engage with health-related content online. The findings of the study suggest diversity in users’ practices, often related to offline contexts, and highlight key opportunities for exploiting the potential of social media to support users as well as potential barriers to some individuals’ engagement.
- Building a blogging and social media network for the dissemination of high quality evidence
André shared the trials and tribulations of building an evidence-based blogging platform that helps people engage with important new research. If you want an introduction to blogging and social media that’s laced with terrible puns, this talk’s for you!
- Disseminating digital heath information
Michael Laffan and Kevin Robinson, British Lung Foundation
Michael and Kevin shared how the British Lung Foundation disseminate their digital health information and promote their online services to a growing audience.
12.10 – 12.55 Making video work for you and your service users Q&A panel session
You can find out more about our panel and their work on the links below.
- Gaby Jeffs, Magneto Films
- Eleanor Stanley, Stories for Health
- Richard Wyatt-Haines, Health and Care Videos
13.35 – 15.10 Creating effective digital health information
This practical session will use case studies to share key skills for producing effective online information:
- Developing online resources to meet user needs
Cassie Davis, CLIC Sargent
In 2015 CLIC Sargent developed a digital hub to help teenagers and young adults understand and cope with the impact of cancer on their personal relationships, sex and fertility. In this presentation Cassie Davis, CLIC Sargent’s Information Manager, talked through how it was created, and the successes and challenges along the way.
- Transforming your print into interactive power
Rosemary Plum, Script TV
Patient and family engagement is one of the biggest challenges in healthcare education. As the NHS looks for new ways to improve population health, provide a better experience of care and lower healthcare costs, we need to create different and innovative ways of promoting healthier lifestyles.
Audience research tells us that people are deeply influenced by the behaviour of those around them and what they watch in the media. Compared to the single one-size-fits-all direction of print, two-way engagement with digital media allows specific audiences to be targeted for the delivery of healthcare education that achieves greater emotional engagement.
The transition from print to interactive media allows you to maximize the use of today’s technology to cut across social boundaries to deliver quality, purpose and benefit for you and your patients.
- A guide to creating online patient information for the uninitiated
Anneliese Levy, Freelance Health Information Writer and Researcher
Anneliese spent nearly a year working on a project to redevelop the patient and family web-pages at Anthony Nolan. This presentation takes you through everything she learnt on this project from user-testing and 'information architecture' to writing for the web. Hopefully this will help those who are just starting out in the online health information world.
- ‘Just give me the facts and don't waste my time!’ - User testing and user panels in the development of the 'ESC Student' health information app
Dr Knut Schroeder, Expert Self Care
Learn about Knut’s experiences of working with a user panel and conducting user testing to develop the 'ESC Student' app. With real life examples, he shared key learning points - and practical tips to take away.
15.25 – 16.25 Digital support for people to understand and manage their health
This session will explore how digital health information can support people to feel informed and in control of their health and wellbeing choices.
- 15 years digital perspective on health empowerment
Lorenzo Gordon, Maldaba Ltd
Since 2002 Maldaba has partnered with organisations such as the NHS, UCL, Imperial College, King’s College London, the London School of Hygiene & Tropical Medicine, Brook and the Family Planning Association to deliver easy-to-use technology around healthcare. Co-founder and director Lorenzo Gordon looks back on the projects of the last 15 years and examines the role digital has had to play in contexts such as contraception, self-harm, learning disabilities, primary care in Africa, healthcare research and supporting healthcare providers.
- Are patients confused about .com? If so can PHRs help?
What are personal health records (PHRs)? How can – and could – they be of value to patients, carers and clinicians? How do they fit within the national strategy to 'use data and technology to transform outcomes for patients and citizens'? What opportunities and challenges do they provide for the future?
- Quality of information in online discussion forums
Jennifer Cole, Royal Holloway
Online discussion forums provide huge opportunities for the dissemination and exchange of health information, but professional health providers are extremely cautious of peer-run and managed forums, due to concerns over the harm that could be caused by poor quality information. This talk presented research on how forums can help to signpost higher quality information and steer users away from more problematic posts and comments, using the US-based discussion site Reddit, and its Ebola discussion forum, as a case study.