Improving the accessibility of health information: 1 day learning event
People living with disabilities often experience poorer health and healthcare than the general population. Too often health information reinforces these inequalities rather than helping to break them down.
On 26 November 2015 PiF was delighted to hold an event in Manchester that explored improving the accessibility of health information for disabled people.
Through attending the event we hoped participants would gain:
Increased awareness of challenges experiences by people with disabilities when accessing health information
Increased awareness of standards and guidelines for improving accessibility of health information for people with disabilities
Increased awareness of different approaches and formats for creating health information that is accessible for people with disabilities
Links to presentations shared as part of the event can be found below.
Session 1: Challenges experienced by disabled people when accessing health information
- Brian Hilton, GMCDP, Transcript: Brian Hilton, Digital Campaigns Officer, Greater Manchester Coalition of Disabled People: The GMDCP is an organisation of disabled people, run and controlled by disabled people. Brian talks about the experiences of their service users in accessing health information, and the work of GMDCP including links to their factsheets.
- Sense Presentation 26 Nov 2015: Nicole Venus-Balgobin, Project Manager, Sense: The national (UK) voluntary organisation working with and supporting people of all ages who are deafblind or have associated disabilities discuss the experiences of deafblind people in accessing information and how this has impacted on their overall healthcare experience.
Session 2: NHS England Accessible Information Standard
- NHSE Accessible Information Standard Presentation: Jane Fox (Programme Manager at NHS England) shares: the background to the development of the Accessible Information Standard; experiences shared by patients, service users and carers as part of engagement and consultation to inform the Standard; learning from pilot sites including top tips and advice; key points of the Standard including the scope and advice for implementation.
Session 3: Case studies - accessible information projects
- Mental Capacity Assessment for Patients with Communication Difficulties: Mark Jayes, NIHR/HEE Clinical Doctoral Research Fellow, Sheffield Teaching Hospitals NHS Foundation Trust. Following a poster presentation at the PiF Annual Conference, Mark his NIHR / HEE funded project to develop a toolkit for supporting patients with communication needs during mental capacity assessment.
- Measuring Experience of Patients and Service Users with Learning Disabilities: Amy Tallett (Associate Director Health Experiences) Picker Institute Europe. Amy shares the work of the Picker Institute in developing an inpatient survey and friends and family test for patients and service users with learning disabilities.
- All About Lymphoma Easy Read: Anne Hook, Lymphoma Association: 'All About Lymphoma' - this presentation shared the organisation's approach to developing this BMA patient information award winning easy read booklet.
- Maximising Understandability of Easy Read Information: Rosalind Moffitt, Inklecomms: This presentationconsidered how to maximise the understandability of easy read information.