Current buzz words in healthcare give patients centre stage - personalised care, patient-centred care, shared decision making and self management, to name but a few.
With so much emphasis on the patient, the need for top-quality consumer health information has never been higher. Join us for this half-day seminar to explore how patients themselves are creating and contributing to information on health, and how they are teaming up with communication professionals to do so. The event is free to PiF members (please ensure you are logged in as a member before registering for the event), and costs £30+VAT for non-members.
The seminar will be held on Wednesday 19 November at the Digital Lounge, Lighthouse, 28 Kensington Street, Brighton BN1 4AJ. It will run from 10am to 1pm, with registration and coffee from 9.30am.
The agenda for the day is shown below:
09:30 – 10:00 Registration, refreshments and networking
10:00 – 10:10 Welcome and update from PiF: Louise Coghlin, Advisory Board Member and Claire Murray, Membership Manager - Patient Information Forum
10.10 – 10.30 Insights from social media: conversations about mental health on Twitter: Beth Granter, Digital Consultant (Data and Analytics) - Brilliant Noise
The rise of social media has given a public voice to millions of people. What can we learn from all of this chatter? Digital strategy agency Brilliant Noise examined conversations about mental health on Twitter in the run-up to Christmas. Beth will outline what people were saying and the possible implications for health communication programmes, along with the processes and tools used. http://brilliantnoise.com/
10.30 – 10.55 Face-to-face encounters with expert patients: Stan Pearce and Karen Arslan, Patient Tutors, Expert Patient Programme - Sussex Community NHS Trust
People with chronic conditions often come to know their condition better than anyone else. Hence the birth of the Expert Patients Programme: face-to-face, group sessions for people with long-term health problems run by people just like them. Stan and Karen will share their experience of supporting others to take the lead in managing their own care, and the types of information resources that could help along the way. http://www.sussexcommunity.nhs.uk/get-involved/expert_patients_programme.htm
10.55 – 11.15 Into the limelight: inviting media interest in personal stories: Toni Slater, Communications Manager - Action Medical Research
Case studies that highlight patients’ personal experiences can raise awareness of health issues, boost understanding and garner support for fundraising efforts amongst other things. So how do you go about finding people who are willing to share their story, guide them through the processes involved and help them deal with media interest? Toni will explain the approach she takes at Action Medical Research, a charity that funds vital research to help sick and vulnerable babies and children. http://www.action.org.uk/
11.15 – 11.40 Networking and coffee
Meet like-minded people, investigate ways to share best practice or explore the possibility of working together.
11.40 – 12.05 From rhetoric to reality: putting patients at the core: Kevin Crowley, Executive Director - CRI
CRI is a charity that helps people who are affected by drugs, alcohol, crime, homelessness, domestic abuse and antisocial behaviour – people who might be hard to reach via conventional communication channels. Kevin will outline CRI’s philosophy of involving service users in the widest possible sense, from empowering them to become peer mentors who deliver front line services, to including them in governance structures. http://cri.org.uk/
12.05 – 12.25 And finally… do fictional patients from the literary world have something to offer?: Ella Berthoud - Painter, Author and Bibliotherapist
“When you’re engrossed in a novel, unable to tear yourself from the page, you are seeing what a character sees, touching what a character touches, learning what a character learns.” So writes Ella in ‘The Novel Cure, An A-Z of Literary Remedies’, which prescribes novels, not medicines, to ease our ailments. Ella, who recommended books for the Reading Well Mood-boosting Books scheme, will share her love of reading and her take on using novels as salves. http://www.theschooloflife.com/about-us/faculty-and-staff/faculty-members/b/berthoud-ella/
12.25 – 12.55 Group discussion: How can we help patients to evaluate the quality of health information online?
There’s no shortage of health information on the internet, but its quality is variable. How can people who have no medical
training judge the quality of health information and what can communication professionals do to help? Over to you.
12:55 – 13:00 Summing up, close and thanks: Claire Murray, Membership Manager - Patient Information Forum (PiF)