The Patient Information Forum is delighted to be holding an event on Health Information for Children and Young People on Tuesday 12 November 2019. You can view the draft agenda below:
09.30 – 10.00 Registration, refreshments and networking
10.00 – 10.15 Welcome and overview
Chair: Kath Evans - Director of Children’s Nursing, Barts Health NHS Trust
10.15 – 10.45 Meeting the health information needs of young people today, whilst tackling potentially taboo topics
Nick Posford - CEO, CICRA: better lives for children with crohns and colitis
In 2017, CICRA was approaching its 40th anniversary. As a charity that supported children affected by inflammatory bowel disease, and their families, it was important to update our information to meet the needs of young people today. We had to completely rethink how we developed it, the formats we might need and how our target audiences might want to engage with it, all whilst tackling potentially taboo topics.
10.45 – 11.15 Speaker to be confirmed
11.15 – 11.45 Refreshment break following the rules of Speeding Networking
11.45 – 12.15 Involving children and young people in the development of information resources
Lucy Bray - Professor of Child Health Literacy, Edge Hill University
Lucy is working with children and young people on three research projects using a range of different methods to develop engaging health information resources. This presentation will provide an overview of these projects and developed resources and discuss some lessons learned and top tips for working with children and young people when developing resources.
12.15 – 12.45 Title to be confirmed
Eleanor Stanley – Writer and Director, Stories for Health and Kate Begley - Clinical Physiologist, Evelina London Children’s Hospital
12.45 – 1.45 LUNCH
1.45 – 3.00 Practical session
3.00 – 3.15 Refreshment break
3.15 – 3.45 User led and user generated content
Cassie Davis - Information Service Manager, CLIC Sargent
User Generated Content (UGC) is a hot topic. At CLIC Sargent we've been working with young people aged 16-24 to create a new YouTube channel by young people with cancer, for young people with cancer.
We'll share how we've done this, what we've learned along the way and how we're planning to work with more young people to create content.
3.45 – 4.15 Experiences of service evaluation into a research project and how to involve service users in the process
Tara Shea - PhD Fellow, Barts Health NHS Trust / Queen Mary University of London
Tara's presentation will cover clinical experiences, audit development, implementation, qualitative participatory action approach (PAR) and recommendations for how a small idea can grow and development with the support of the service users.
4.15 Sum up and close
Delegate fees for the event are as follows:
£160+VAT for PIF members (PIF members should login to the website to see the PIF member rate)
£250+VAT for non-PIF members (this includes a complimentary 1-year individual membership to PIF)
You can register to attend the event below.
We hope you can join us!
The PIF Team