Involving Users in Developing Health Information (London) - Thurs 27 June 2019

Involving Users

The Patient Information Forum is delighted to be holding an event on Involving Users in Developing Health Information on Thursday 27 June 2019.  You can view the draft agenda and book your place below:

09.30 – 10.00      Registration, refreshments and networking

10.00 – 10.30      Welcome, update and launch of new PIF website 

10.30 – 11.00      Patient perspective
Mike Etkind - Volunteer Panel Member, Healthwatch Bucks


Mike will explore the value of involving patients/carers/public and the benefits of doing so early on, potential sensitivities and elephant traps and the need to support volunteers and value those giving their time.

11.00 – 11.30      Women’s Voices Involvement Panel
Kate Brian - Women’s Voices Lead, Royal College of Obstetricians and Gynaecologists (RCOG)

11.30 – 12.00      Refreshment break following the rules of Speeding Networking
This will be your opportunity to connect with attendees and share experiences.

12.00 – 12.30      Involving users in the development of decision support resources
Jonathan Berry – Personalisation & Control Specialist; Lead for Health Literacy and Shared Decision Making, NHS England

12.30 – 1.00        Speaker to be confirmed

1.00 – 1.45          LUNCH

1.45 – 2.30          Practical session

2.30 – 3.00          Cancer Information Pathway – Involving users across an Integrated Care System to design and deliver a Cancer Information Signposting Service
Sarah Jane Woods - Dorset Macmillan Cancer Information Project Manager, Dorset Cancer Partnership, Dorset Clinical Commissioning Group

Guided by an Equality Impact Assessment and PIF’s Perfect Patient Information Journey, Sarah Jane will share findings from wide reaching engagement across patient and carer groups, healthcare professionals, equality and diversity groups, voluntary and community sector.

Views were sought on experiences of finding, receiving and understanding health information and this has been used to inform the design of a cancer information service for Dorset and a digital portal to empower healthcare professionals and the public across Wessex, whilst also helping people who are not digitally enabled, find and most importantly understand the information they need.

3.00 – 3.20          Refreshment break

3.20 – 3.50          Working with your target audience
Kaye Stevens – Care Information Manager, Motor Neurone Disease (MND) Association 

An exploration of the possible obstacles to user engagement and why using more than one approach in any project is beneficial. Examples from different information projects will be shared. H ave your mobile phones ready for this interactive session!

3.50 – 4.20          Speaker to be confirmed

4.20 – 4.30          Sum up and close


Delegate fees for the event are as follows:

  • £160+VAT for PIF members (PIF members should login to the website to see the PIF member rate)
  • £250+VAT for non-PIF members (this includes a complimentary 1-year individual membership to PIF)

You can register to attend the event below.

We hope you can join us!

The PIF Team


Royal College of Anaesthetists, Churchill House, 35 Red Lion Square
Churchill House, 35 Red Lion Square
Map and Directions

Date: 27 June 2019

Start Time: 9:30 am
End Time: 4:30 pm

Price: £300.00

Registration Details

Personal Information


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