The Patient Information Forum is delighted to be holding an event on Health Information for the Reaching and Engaging with Hard to Reach Groups on Thursday 28 March 2019. You can view the draft agenda below:
09.30 – 10.00 Registration, refreshments and networking
10.00 – 10.15 Welcome and overview
Anne Ballard - Non-Executive Director, Patient Information Forum
10.15 – 10.45 Bread and Butter: Using the learning of core life skills for positive impact on health and wellbeing
Jenny Hand – CEO, Reaching People and Michelle Stratford – Founder, Planet Leicester Bakers
Planet Leicester Bakers successfully uses bread making in a wide variety of communities for therapeutic benefit.
Reaching People Moneywise Plus project supports people to become financially confident and independent, thereby impacting positively on their health and wellbeing. The two organisations are working together on a new project.
10.45 – 11.15 Creating information for people with communication problems after a stroke
Deborah Fajerman - Writer Editor, Stroke Association
11.15 – 11.45 Refreshment break following the rules of Speeding Networking
This will be your opportunity to connect with attendees and share experiences.
11.45 – 12.15 Extending reach – the barriers and facilitators to engaging with a broader MS community
Niamh McGarry - Interim Evidence Manager and Phillip Anderson – Head of Policy, MS Society
We estimate that there are over 100,000 people with MS in the UK, and that each year around 5,000 people are newly diagnosed with the condition. We engage with people via multiple channels including press and social media. However, it is apparent that there are large groups of people across the UK with whom we do not engage effectively.
As it is important to us to represent the MS community as a whole, we want to address this issue and increase our engagement with these sometimes hard to reach groups. The first step in this process is to discover what the barriers to engagement are, these could include actions taken, or not taken, by the MS Society and could also be related to feelings or the personal ideals of these people. By identifying these barriers, we hope to be able to address some of the challenges and start building relationships for the future.
12.15 – 12.45 Within Reach – engaging with female street sex workers to improve diagnosis and treatment of hepatitis C
Neil McGregor-Paterson – Communications Director, New NHS Alliance
This presentation will consider how the adoption of health creating practices successfully addressed many of the unmet hepatitis C needs of the Leeds female street sex worker community.
It will explore the why? what? and how? while challenging delegates to consider how Health Creation could support their activities in engaging hard-to-reach communities.
12.45 – 1.30 LUNCH
1.30 – 2.15 Practical session
This is your opportunity to take some time to explore the challenges you feel you face on this topic and how you might resolve them.
2.15 – 2.45 Reaching those in the BAME community in Wales living with type 2 diabetes
Kimberley Littlemore - eHealth Digital Media Ltd
Speaker to be confirmed
2.45 – 3.00 Refreshment break
3.00 – 3.30 Identifying the information and support needs of trans women in relation to prostate health
Minal Smith - Health Information Officer, Prostate Cancer UK
Minal will share learnings from Prostate Cancer UK’s work to identify what information and support trans women and male assigned non-binary people want and need on prostate health – and how we plan to address those needs.
3.30 – 4.00 10 ways to well-being and the building resilience project
Oliver Hall – Mental Health Project Manager, Groundswell
The session will be exploring the work that groundswell have been doing to raise awareness of mental health and wellbeing amongst the homeless population.
4.00 Sum up and close
Delegate fees for the event are as follows:
£150+VAT for PIF members (PIF members should login to the website to see the PIF member rate)
£225+VAT for non-PIF members (this includes a complementary 1-year individual membership to PIF)
You can register to attend the event below.
We hope you can join us!
The PIF Team