Perfect Patient Information Journey event (London) - Thurs 28 June 2018

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PIF is delighted to be holding an event on the Perfect Patient Information Journey on Thursday 28 June 2018 in London.

This event will include the launch of the final report of our Perfect Patient Information Journey project.  You can read more about the project here:

A draft agenda for the day can be viewed below:

09.30 – 10.00      Registration, refreshments and networking

10.00 – 10.15      Welcome and overview
Chair: Sue Farrington – Chair, Patient Information Forum

10.15 – 10.45      Why improving the patient information journey is important
Zoë Horwich - Sustainable Healthcare Lead, AbbVie UK

The Sustainable Healthcare initiative includes projects that create patient-centric healthcare, and events that bring people together to make a remarkable impact on the health service.

10.45 – 11.15      The value of good information support
Prof Martin Wilkie – Consultant Renal Physician, Sheffield Teaching Hospitals NHS Foundation Trust

11.15 – 11.45      The Perfect Patient Information Journey project
Jane Cox – Policy and Public Affairs Adviser, Patient Information Forum

An overview of PIF's latest research into what makes a 'perfect patient information journey', with tips and recommendations for NHS services and other information providers.

11.45 – 12.15      Refreshment break following the rules of Speeding Networking
This will be your opportunity to connect with attendees and share experiences.

Spend 3-4 minutes talking to someone you have not met before, and then move on to someone new.

12.15 – 12.45      Accessing information – the patient perspective on the information journey
Trishna Bharadia - Speaker, Writer, Advisor and Expert Patient (MS & Chronic Illness)

Trishna will be looking at ‘why’, ‘how’, ‘where’ and ‘what’ when it comes to patient access to health information.

12.45 – 1.15        Supporting patients to identify information support gaps and ask questions
Dr Rishi Fofaria, IBD Clinical and QI Research Fellow, St Mark's Hospital, LNWUH NHS Trust

An overview of a real-life example of identifying information gaps amongst physicians and patients with Inflammatory Bowel Disease at St Mark's Hospital.

1.15 – 2.00          LUNCH

2.00 – 2.30          Practical session
Developing a Perfect Patient Information Journey in your service.

2.30 – 3.00          BHF’s New Patient Information Programme
Amy Corkery – Editor, Patient Information, British Heart Foundation

Amy’s presentation will focus on how the BHF have re-developed their risk factor and behaviour change print and digital information into a new portfolio with a ‘patient first’ approach.

3.00 – 3.20          Refreshment break

3.20 – 3.50           Developing patient journeys in primary care: Our experience with Patient Connect at South Downs Health and Care GP Federation

Dr Nick Harvey – South Downs Health and Care GP Federation and Andrew Cockayne - Captive Health

In 2017 we set out to develop information pathways for patients with common conditions. As a federation of 20+ GP practices, we chose to bring these to life with Captive Health’s Patient Connect platform.

This was re-designed for us as My Local Health and offers patients the right information at the right time, pathway by pathway to promote self-care and regular contact with their surgery. This presentation will describe what we set out to do, how we approached it and presents the early results for peer review and comment.

3.50– 4.20           Owise – A personalised breast cancer app
Dr Anne T Bruinvels – Founder, Px HealthCare Ltd

Anne’s presentation is about the issues that people affected by cancer experience and how the award-winning mobile app OWise breast cancer supports patients by providing them with personalised medical information, a tailor-made list of questions to help them prepare for doctor’s visits and real-time tools to record and share their well-being and side effects.

These Patient Reported Outcome (PRO) are important for both patients and clinicians as they give people insight into how patients perceive their treatment and inform clinicians if the treatment needs to be adjusted. This has been shown to improve patients’ quality of life and avoid unnecessary hospitalisations. OWise is freely downloadable and will be developed for other cancer types in the very near future.

4.20 – 4.30          Sum up and close
Chair: Sue Farrington – Chair, Patient Information Forum 


Delegate fees for the event are as follows:

£125+VAT for PIF members (PIF members should login to the website to see the PIF member rate)

£200+VAT for non-PIF members (this includes a complementary 1-year Individual membership of PIF)

You can register to attend the event below.

We have some sponsorship opportunities available at this event.  To discuss further please email

We hope you can join us!

The PIF Team

This event has been supported with an unrestricted grant from AbbVie


Royal College of Anaesthetists
Churchill House, 35 Red Lion Square
Map and Directions

Date: 28 June 2018

Start Time: 9:30 am
End Time: 4:30 pm

Price: £240.00

Registration Details

Personal Information


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