Health Information for Children and Young People event (London) - Fri 3 November 2017

PIF is delighted to be holding an event in London on Health Information for Children and Young People on Friday 3 November 2017.

The event will share learning, best practice and good examples of:

  • Innovative approaches to sharing information with children and young people
  • Co-creating and involving children/young people in the development of health information
  • Top tips for engaging with (or writing for) different age groups

The event will be chaired by Kath Evans, Experience of Care Lead – Maternity, Infants, Children and Young People, at NHS England.

Draft Agenda

9.30 – 10.00    Registration and networking

10.00 – 11.00  Session 1

  • Welcome and introduction from Chair Kath Evans, Experience of Care Lead – Maternity, Infants, Children and Young People, NHS England
  • Young person’s panel: Experiences of accessing and using health information NHS Youth Forum (tbc)

11.00 – 11.30  How does your organisation meet the information needs of children and young people?

  • Speed networking (including refreshment break): This is your opportunity to engage with other event attendees, and make useful connections that will help drive your activities and projects forwards.

11.30 – 12.35  Session 2

  • Co-creating customised and reliable, home-based digital condition-management apps: a qualitative study involving children with long-term conditions Dr Veronica Swallow, Chair in Child and Family Health, University of Leeds
  • So what is MND anyway? Engaging with young people to develop a new guide and web app Kaye Stevens, Care Information Manager, MND Association

12.35 – 13.25  Lunch

13.25 – 14.30  Session 3

  • Your teeth are in control: top tips for engaging different ages Dr Zoe Marshman, Consultant in Dental Public Health, Sheffield University
  • Using creative methods to improve children's and young people’s understanding of cancer, and the impact parental cancer can have on their family Dr Caroline Leek, Founder, Fruit Fly Collective

14.30 – 15.00  Interactive session: challenges and solutions

15.00 – 15.15  Break

 15.15 – 16.15  Session 3

  • Tackling tinnitus in children: hands on resources Nic Wray, Communications Manager, British Tinnitus Association
  • Dementia Explained: developing a website with children and young people Robin Brisbourne, Communications Manager – Science, Alzheimer’s Research UK

16.15 – 16.30  Close, Chair Kath Evans, Experience of Care Lead – Maternity, Infants, Children and Young People, NHS England


The event will cost £150+VAT for PIF members. You will need to be logged in to the website to see the PIF member rate.

The cost for non-members is £225+VAT, and this price includes a 1-year Individual membership of PIF.

You can register to attend the event below.

We have some sponsorship opportunities available at this event which you can see here.  To discuss further please email

If you have any queries about this event please contact

We hope you can join us!

The PIF Team


Holiday Inn London - Bloomsbury
Coram Street
Map and Directions

Date: 3 November 2017

Start Time: 9:30 am
End Time: 4:30 pm

Price: £270.00

Registration Details

Personal Information


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