People want it
People want ‘More information, choice and ownership’, according to a Healthwatch report from 2015.
PIF’s ‘Is Knowledge Power?‘ report (2015) found that 21% of patients with long term conditions, representing over 3.2 million people, disagree that they have enough information to feel confident in discussing decisions about their care with their doctor.
‘One in twenty Google searches are for health-related information’, according to a Google blog from 2015. NHS Choices receives over 11 million visits each week.
Examples of organisations that stand up for patients:
- Patient opinion
- Picker institute Europe
- Point of care foundation
- National Voices
- The King’s Fund
- The Patient Experience Network
- The Beryl lnstitute
Policy requires it
- Scottish Government – Charter of Patient Rights & Responsibilities
- NHS constitution for England
- Welsh Government – Health and care standards
- Safety and quality standards for health and social care in Northern Ireland
PIF’s Making the case for information describes further policy and legislative levers
Watchdogs are monitoring it
- NHS Choices – Health watchdogs and authorities
- Healthcare inspectorate Wales
- Healthcare improvement Scotland
- Regulation and Quality Improvement Authority (RQIA), Northern Ireland
- Parliamentary and Health Service Ombudsman
Regulators of healthcare professionals demand it
There’s a risk of negligence claims without it
Pharmaceutical Industry codes insist on it
- Association British Pharmaceuticals (ABPI) Code of Practice for the Pharmaceutical Industry – Prescription Medicine’s Code of Practice Authority (PMCPA)
- International Federation of Pharmaceutical Manufacturers & Associations (IFPMA) Code of practice
- Proprietary Association of Great Britain (PAGB) Medicines Advertising Codes
Return to the main ‘Judging and assuring the quality of health information‘ page.