The Independent Diabetes Trust have published their 2015 ‘Care in Crisis’ report highlighting the views of people with diabetes and how that relates to the reality of today’s NHS.
The Trust has over 17,000 members, all of whom live with diabetes. They identified from contact with their members that the care, education and treatment of people with diabetes vary greatly across the country.
As a result of this in January 2015, the Trust circulated a survey to its then membership of 15,569 to investigate their views on the services they receive and their priorities for improving their care and therefore their future health.
They survey found that 37% of respondents were not given appropriate advice and information about diet and exercise at the time of diagnosis.
Over 90% of people felt that an education programme at the time of diagnosis or 6 months after would be either helpful or very helpful.
The report highlights that this finding supports the NICE Diabetes in Adults Quality Standard recommendations that people with diabetes, and/or their carers should receive a structured education programme which should fulfil the nationally agreed criteria from the time of diagnosis, with annual review and access to ongoing education.
However, the Trust questions the logistics for delivering structured education to 2.5 million people already diagnosed, in addition to those being newly diagnosed.
The report recommends that CCGs should provide hard copy information about diet, exercise, the differences between Type 1 and Type 2 diabetes and what medications are designed to do, in non-medical language.
They argue this would help to alleviate the logistics of the newly diagnosed and 250,000 people not having received a structured education programme and would give people immediate access to basic information which would help them to understand their type of diabetes, the necessary lifestyle changes, and the management of their diabetes. And would prevent unnecessary anxiety caused through a lack of information and reduce the risk of complications.
The full report can be read here.
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