• 13Nov

    Patient experiences of life with long term conditions

    NHS Improving Quality (NHS IQ) and Ipsos MORI’s Ethnography Centre of Excellence (ECE) have launched a set of resources, including five videos, giving insight into the lives of people with multiple long term conditions (LTCs).

    The resources are the result of an evaluation that identifies ways in which patients feel the health and care system can be improved to meet their needs. The key findings include:

    • People greatly value the care and support they receive from the NHS and the wider health and care sector, and in the main feel the care they receive is good
    • People are trying hard to manage their long term conditions to the best of their abilities, but often feel the system is not set up to cope with their multiple and complex needs.
    • People with more than one long term condition struggle to coordinate them all. They can feel there is no support linking all of their conditions and focusing on them personally and holistically.
    • People with long term conditions want to have everyday achievable goals and support that fit realistically within their everyday lives.
    • People can feel that they are a burden within their home as well as within the health and care system, which can prevent them seeking the help and support they need.
    • Too often, there is an absence of discussion about care and care needs, within the home and within the health care system.

    Videos and a presentation are available detailing the findings.

    The work has been carried out through NHS IQ’s Long Term Conditions Improvement programme, commissioned by NHS England. For more information contact Beverley Matthews, Long Term Conditions Lead at NHS Improving Quality, at beverley.matthews@NHSIQ.nhs.uk.