Stroke is the third leading cause of mortality and major cause of adult physical disability yet there is little evidence on the needs of patients after stroke, particularly longer term and in different ethnic groups.
The National Institute for Health Research have reported findings from their study ‘Modelling, evaluating and implementing cost-effective services to reduce the impact of stroke’. The project aimed to obtain information to underpin the implementation of national recommendations for stroke care by a number of measures, including understanding users’ perspectives of longer-term need.
A national survey of stroke survivors 1–5 years post stroke was undertaken using patients recruited through Medical Research Council General Practice Research Framework (MRC GPRF) and two stroke registers. Levels and type of need were calculated and qualitative interviews of patients’ and carers’ perceptions of needs were conducted alongside an ethnographic study of the organisation of services provided.
1,251 participants took part, and 54% of patients reported an unmet need for stroke information. The study concludes that the data suggests that patients do not simply progress through a care pathway and that quality of care can be affected by multiple factors including complexity of needs, moral evaluations, divergent staff views and patient/carer knowledge and agency.
You can read the full study here.