An independent group has been set up by the Government to review the NHS Constitution, with a view to strengthening it. The NHS Future Forum Working Group on the NHS Constitution includes health and social care professionals and representatives of charities, patients’ groups, trade unions, and the private sector. A public consultation later this year would give patients and staff the chance to express their views on how to reinforce and improve it. Any amendments would then come into effect by April 2013.
Sanofi are supporting patient groups in the UK with the launch of their 2012 Patient Group Bursary. Patient groups entering the 2012 bursary scheme will need to demonstrate that their programmes can deliver empowerment and information, of which three successful applicants will receive a grant to the value of either £25,000, £15,000 or £10,000. Applications for the scheme are now open and will close on Friday 27th April.
More than 34 million people are presently living with HIV infection. Antiretroviral therapy (ART) can help these people to live longer, healthier lives, but because of side-effects, adherence (taking these medications every day) can be difficult. Mobile phone text-messaging has the potential to help promote adherence in these patients. This Cochrane review showed that weekly mobile phone text messages to patients on ART can help them to take their medication every day. It can also help to reduce the amount of HIV in their bloodstream.
The Social Care Institute for Excellence (SCIE) is developing a website that will help people to make choices about care. FindMeGoodCare.co.uk will cover all types of care and support for adults including regulated and unregulated services in England. It will provide links to specialist websites (including local services, specialist and independent financial advisers). The site will go live this summer and will provide information about services for all adults, not just older people. The site will guide people through comprehensive information about care options and choices such as the role of the local authority, paying for care and what constitutes good care.
evaluating the impact of information
This study aimed to explore peoples’ needs and expectations of written medicines information (WMI), and to determine the barriers and facilitators experienced or perceived in the context of WMI provision and use. The findings suggest less than half had previously received WMI, with many unaware of its availability. Many, but not all, wanted WMI to supplement the spoken information they received but not to replace it, and it was predominantly used to facilitate informed choice, ascertain medicine suitability and review instructions. The current leaflets were considered technical and long, and a summary leaflet in addition to comprehensive information was favoured. Accurate side-effect information was the most important element that participants desired. The most common barriers to effective WMI use were time constraints and patient confidence.
This two day EyeforPharma event explores every aspect of pharma-patient engagement, enabling delegates to share knowledge, take part in debate and learn from innovators. Through detailed case studies and patient led sessions the aim is to ﬁnd out the most useful and innovative ways to connect. Discover how to keep up with the quickly evolving world of patient adherence, communication and engagement. The conference explores the new patient landscape and the emergence of the e-patient, integrating adherence in the health care chain and how to effectively measure adherence. the conference takes place in London on 29 and 30 May 2012.
The relationship between individual patients and the health service has been remarkably consistent since the establishment of the NHS in 1948. However, during this time, expectations, technology, patterns of disease and demography have all changed significantly. There remains great attachment to the idea of the NHS as a public service, but public expectations of the service and assumed safety and willingness to bear an ever increasing tax burden are now very different. This paper from the NHS Confederation explores aspects of these changes and what this may mean for the future leadership and sustainability of the NHS.
Foundation for Informed Medical Decision Making in the US has changed it name and launched a new web site. As of February2012, the organisation becomes known as the Informed Medical Decisions Foundation. The Informed Medical Decisions Foundation has been working for over two decades to advance evidence-based shared decision making through research, policy, clinical models and patient decision aids. New features of the website include a comprehensive collection of shared decision making research.
The Picker Institute in the USA launched the concept of Always Events© as an ‘organising principle’ to drive healthcare systems to become more patient-centered. Within the initiative, the Iowa Health System has developed a teach-back training toolkit. The aim is to ensure that clinicians and physicians always use teach-back strategies to help patients understand their healthcare instructions before discharge. During teach-back, the nurse asks open-ended questions in a non-shaming way so it doesn’t sound like a test. The patients say back in their own words their healthcare instructions. This enables the nurse to check for understanding and, if necessary, to re-teach the information, and check again for understanding.