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  • 8Apr

    NICE at 20

    This blog by Nicholas Timmins, for the King’s Fund, looks at how NICE has evolved over its 20 year lifetime. https://www.kingsfund.org.uk/blog/2019/03/nice-at-20    

  • 8Apr

    When patients innovate

    Patients have unique insights to invent tools that improve outcomes and make life easier, but it can be a long slog getting an invention used widely. This article by Jacqui Thornton in the BMJ, highlights a variety of ways patient’s have been innovators to help both their own condition, and that of many other patients, and…

  • 8Apr

    Outcomes for mental health services: what really matters?

    Through a series of over 100 conversations with people actively involved in mental health services in England, including current and former service users, this report highlights how frameworks for measuring outcomes are often too narrowly focused on clinical outcomes. While recovery-based frameworks are trying to widen this, neither approach fully captures what really matters to…

  • 8Apr

    PRSB wants your help to define core information for joined-up care!

    Information sharing between health and social care needs to improve and that’s why PRSB is asking for your help to complete a new survey. The survey is a key part of the work which was commissioned by NHS England to define the core information that needs to be shared in local health and care records.…

  • 8Apr

    Defining unmet clinical need across the pathway of brain tumour care: a patient and carer perspective

    A UK-based national survey has been conducted to help determine the experience of patients with brain tumours and their carers throughout the treatment pathway and to identify their views on potential service gaps. The structured questionnaire was given at patient workshops across 30 counties and online through a charity newsletter. In total, 136 survey responses…

  • 1Apr

    Upcoming webinar: Top tips for publishing accessible written content

    Highlighted by AbilityNet, on Thursday the 4th of April, Jack Garfinkel, Senior Content Designer at Scope, will share his top tips for publishing accessible written content. Jack will share how to get your team on board and ensure you’re creating content relevant to your audience and highlights the importance of gaining feedback/testing. Register now: Top…

  • 1Apr

    The role of patient value and patient-centred care in health systems

    This article, published by IAPO, looks at patient-centred care, with its emphasis on patient value, as a widespread health system goal. To examine the progress of the evolution towards more patient-centred health care and draw lesson for the future, The Economist Intelligence Unit conducted a survey and interviews on patient representatives, a cohort in which IAPO was…

  • 1Apr

    This is me – A support tool to enable person-centred care

    The Alzheimer’s Society has updated its ‘This is me’ resource.  ‘This is me’ is a simple leaflet for anyone receiving professional care who is living with dementia or experiencing delirium or other communication difficulties. ‘This is me’ can be used to record details about a person who can’t easily share information about themselves. For example, it can…

  • 1Apr

    The Game that continues to inspire a decade on

    Ten years ago The Conversation Game launched in the UK. In that time the cards have been used by individuals wishing to explore what matters most to them and by families looking for a practical way to begin talking with each other around some of these incredibly difficult subjects. GPs and front-line healthcare staff continue to…

  • 1Apr

    NICE: Shared decision making

    This document summarises the evidence base on shared decision making. It is a key therapeutic topic that has been identified to support medicines optimisation. It is not formal NICE guidance. This is a new topic for the 2019 update of medicines optimisation: key therapeutic topics. https://www.nice.org.uk/advice/ktt23    

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