In November last year, PIF held an event on improving the accessibility of health information.
At the event delegates fed back to us that they felt they did not know enough about how to create good health information for people with learning disabilities, and how to involve people with learning disabilities in the development of their health information.
People with learning disabilities often experience worse health and worse health care than the rest of the population, and research shows that people with moderate or severe learning disabilities are three times more likely to die early. Too often health information reinforces these inequalities rather than helping to break them down.
PIF is working with learning disabilities charity CHANGE to produce a resource that will support information professionals to improve their understanding of learning disabilities, and how they can develop information resources that are accessible to people with learning disabilities.
To begin this project we would like to ask for the views and experiences of people involved in health information and communication.
We would like to find out about how you create health information for people with learning disabilities, and how you involve them in your work.
Or, if you don’t produce health information for people with learning disabilities we would like to understand why, and what the barriers are.
We have designed a short survey and are inviting people involved in health to take a few minutes to complete it. The survey will be open until 30 June.
Please take part and share your experiences! Your contribution will ensure the learning resource we produce genuinely supports people working in health develop more accessible information and communication resources for people with learning disabilities.