From a blog by Patients Know Best: Residents across North West London are benefitting from being part of the largest shared patient portal program in the UK.
The Care Information Exchange (CIE) hosts the health records of up to 2.3 million people living in North West London. Powered by Patients Know Best and funded by £3 million investment from Imperial Health Charity, CIE collects data from hospitals and GP practices in the area, and 15 other hospitals outside of North West London including Birmingham, Bristol, Liverpool, Manchester, Scotland and Wales. By using an Application Programming Interface (API) to display data in local medical systems, it enables hospital clinicians to see data about their patients who may also have been treated elsewhere in the country.
Unlike the hospital or GP portals which tie the patient to a single institution, CIE is a true patient portal. It means patients can access their health record from anywhere in the world, and share it with any institution, professional or carer wherever they are.
With the introduction of mass registration, people can now sign up to access their health record at scale and with speed in a number of ways; either by speaking to a member of staff; by using the kiosk check-in screen commonly found in waiting rooms during their outpatient appointment; or by letter of invitation to their home.
Andy Kinnear, Chief Information Officer from Connecting Care – a similar program developed in Bristol, is particularly supportive of this model as it allows patients who travel between Bristol and North West London for tertiary care to easily share their data. He said: “It’s great that all data is truly available to the NHS via open APIs. But more than that, there is a consent layer that allows patients to express their preference on being contacted, taking part in research and sharing with friends and family that actually care for them. We have already had professionals in Bristol access data from London, and vice-versa.”
So far, more than 10,000 patients have registered with CIE and 31% have consented to share data for research purposes. A further 50,000 residents will be invited to register for their CIE account in North West London in the coming weeks. Registration is simple and can be completed using an email address and mobile phone number to support the verification process.
Read the full blog here: https://blog.patientsknowbest.com/2018/11/20/the-largest-shared-patient-portal-program-in-the-uk/