• 11Sep

    Improving end of life care: a framework, review, guideline and events

    The National Palliative and End of Life Care Partnership have launched a new website: Ambitions for Palliative and End of Life Care: A national framework for local action 2015-2020.

    The website aims to make palliative and end of life care a priority at local level, and lists 6 ambitions that partner organisations have agreed to work towards:

    • Each person is seen as an individual
    • Each person gets fair access to care
    • Maximising comfort and wellbeing
    • Care is coordinated
    • All staff are prepared to care
    • Each community is prepared to help

    The Care Quality Commission (CQC), a PiF Partner organisation and member of the National Palliative and End of Life Care Partnership, is conducting a review that will develop understanding of the barriers which prevent people from receiving good quality and joined-up end of life care. The review will focus on priority groups including:

    • People with a diagnosis other than cancer
    • People aged over 75
    • People with dementia
    • People from BAME groups
    • Other groups of people who may have specific needs, such as people with mental health needs, people with learning disabilities, people who identify as LGBT, people who are homeless, prisoners, travellers and gypsies

    The review will identify examples of good local practice that others can learn from. The review will also identify the actions that need to happen nationally so that the inequalities in end of life care services can be addressed. The findings are due to publish spring 2016.

    A new national NICE Clinical Guideline for Care of the Dying Adult, that was released in draft form on 28th July 2015, is due to have its final version published in December 2015.

    The guideline provides an evidence-based set of recommendations for clinical care of the dying adult, throughout the NHS. It is focused on the care needed when a person is judged by the multi-professional clinical team to be within a few days of death.

    It aims to provide guidance to health and care professionals to enable them to better recognise when a person is dying, how to communicate and share decisions respectfully with the dying person and those important to them.

    There are a number of events taking place this autumn and winter to explore how service and care providers can ensure every dying person receives good quality personalised end of life care: