Whenever you go to your GP, have a hospital outpatient appointment or seek a social care service like home help, you tell them about yourself so that they can figure out how best to treat you or meet your care needs. In turn they make sure this important information is included in your notes. This makes perfect sense – after all, if you don’t tell them what’s wrong or what you think you need, they can’t help you.
Your personal and clinical information is important and is protected. In some London projects, people have given their permission for select groups of professionals to share information about them; and the benefits include a better level of care and a more joined-up service for the individual. And some researchers and professionals might use anonymised data to look at how different people are using services to make improvements to existing services or to design new ones.
This new guide sets out the benefits of information sharing and explains how some London schemes are sharing data responsibly. This guide was produced by London Connect, an information transparency project of the London Health Improvement Board (LHIB), a partnership set up by the Mayor of London, NHS London and London Councils and their stakeholders to improve the health of the capital’s population. The London Connect project is delivered by Improvement Science London on behalf of the London Academic Health Science Centres (AHSCs).
Download the PDF guide to information sharing.