The European Patient Ambassador Programme (EPAP) is a free self-learning programme introducing patients and carers to the essential skills and knowledge needed to interact with healthcare professionals, policymakers, researchers and journalists.
It was developed by the European Lung Foundation (ELF) and the NIHR CLAHRC for Leeds, York and Bradford, with the help of patients, and professionals with expertise in key areas. The programme is free and accessible for people affected by any condition.
The programme is run by the Patient Advisory Group, a group of dedicated patient ambassadors, and it is aimed at:
- People with experience of a condition as a patient or carer
- People who are interested in how their condition is treated or managed
- People interested in new research into their condition
- People who want to influence policy around their condition at local, national or European level
- People interested in working with the media or using social media to raise awareness of their condition
- People who are interested in attending and speaking at conferences
The programme is structured over seven modules, which can be studied in any order:
- Being better informed
- Improving public awareness
- Improving treatment and care
- Supporting research and development
- Influencing policy
- Working with the media
- Participating in healthcare conferences
Course participants are able to stop and start as they wish to fit the programme studying around their lives, and the total programme should take no more than 10 hours to complete.
Over 450 people have completed the programme since EPAP started 3 years ago, and the programme was updated earlier this year.
More details about the module content and what being a patient ambassador means are on the website www.EPAPonline.eu.
Please contact Kerstin Morrison if you would like to know more about the programme (Kerstin.Morrison@europeanlung.org).