• 22Apr

    Evaluating an online self-management programme – Epilepsy and you – PIF Best Poster Competition Entry 2016

    At the PIF Annual Conference on Wednesday 25 May 2016 we will be holding our Best Poster Competition.  Entries to the competition will demonstrate partnership working to improve healthcare information and support.

    The best judged poster on the day, as voted for by delegates, will win a prize.  Over the next few days we will be showcasing the entries to the competition.  We start below with a submission from Epilepsy Action.

    You can find out more details about the conference and how you can attend here:  www.pifonline.org.uk/2016-conference

    Evaluating an online self-management programme – Epilepsy and you

    Epilepsy and you is an innovative online self-management programme for people with epilepsy.

    Epilepsy and you was co-produced with people with epilepsy, GPs, neurologists, nurses, psychologists and commissioners. Epilepsy and you is evidence-based. Following an extensive literature review of what has worked in the design and delivery of self-management programmes for other conditions, a Delphi survey, completed by professionals and people with epilepsy, was used to agree the learning outcomes.

    The course supports participants to learn essential epilepsy information, become an expert in their own epilepsy, try out new self-management skills and achieve a better quality of life through self-care.

    Researchers at Coventry University are evaluating the effectiveness of the programme in partnership with people with epilepsy, volunteers who support them, and professionals.

    The evaluation is due later this year. Feedback received so far is very promising:

    “I am thinking more positively and am just trying to be me again, and not that man with epilepsy.”

    “I thought it was great and I wish I could have done it ten years ago.”

    “Better sleep and going back to being my happy, positive self – something that has been missing since I experienced my first seizure nearly 7 years ago.”

    Presenter:           Peri O’Connor,  Healthcare Projects Coordinator
    Organisation:      Epilepsy Action