This study, in Health Expectations published in Wiley Online, explores the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research.
The study concluded that while there is growing evidence of the merits of undertaking PPI, this rarely extends to the meaningful involvement of seldom heard groups.
Many of the programme theories identified point to the need for a radical shift in current practice to enable the reciprocal involvement of seldom heard groups.
Éidín Ní Shé PhD; Sarah Morton PhD; Veronica Lambert PhD; Cliona Ní Cheallaigh MD, PhD; Vanessa Lacey BA; Eleanor Dunn PhD; Cliona Loughnane PhD; Joan O’Connor MsC; Amanda McCann PhD; Maura Adshead PhD; Thilo Kroll PhD
First published: 06 February 2019