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  • 21May

    Share4Rare toolkit for rare advocacy

    This practical toolkit shares best practices and tools that advocates have used to support innovation and offers practical advice on how to make a difference for rare disease patients. Patient advocates give a voice to a spectrum of healthcare stakeholders, which include patients, survivors of illness and caregivers. An advocate can be shaped as an…

  • 13May

    Top tips for creating accessible and useful written content

    Writers and content editors want their work to be useful to their readers. Equally, organisations want their content to be read and understood by as many people as possible, including disabled people (nearly 14% of the UK population). Jack Garfinkel, Senior Content Designer at Scope, and Abi James, Senior Accessibility and Usability Consultant at AbilityNet,…

  • 13May

    The patients behind the clicks: research for the NHS App

    The NHS App is an important element of a digital first healthcare system as outlined in the new NHS Long Term Plan. In this blog, Josh Dresner, user researcher on the NHS App project, describes how patients and staff have informed the development of the app. https://digital.nhs.uk/blog/transformation-blog/2019/the-patients-behind-the-clicks-research-for-the-nhs-app  

  • 29Apr

    New UK web accessibility regulations for HE and the public sector

    AbilityNet will be running a webinar about the new UK web accessibility guidelines on 1 May 2019. The EU Accessibility Directive became part of UK law earlier this year and has created a new set of digital accessibility requirements for public sector organisations, including universities and other higher education Institutions. This Directive will apply to…

  • 12Apr

    New tools to help health professionals boost prevention impact

    Public Health England (PHE) has launched a series of new e-learning tools to help health and care professionals deal with some of the biggest issues in public health. The tools, developed by PHE and Health Education England, are designed to prevent illness, protect health and promote wellbeing. https://www.gov.uk/government/news/new-tools-to-help-health-professionals-boost-prevention-impact  

  • 8Apr

    When patients innovate

    Patients have unique insights to invent tools that improve outcomes and make life easier, but it can be a long slog getting an invention used widely. This article by Jacqui Thornton in the BMJ, highlights a variety of ways patient’s have been innovators to help both their own condition, and that of many other patients, and…

  • 1Apr

    Upcoming webinar: Top tips for publishing accessible written content

    Highlighted by AbilityNet, on Thursday the 4th of April, Jack Garfinkel, Senior Content Designer at Scope, will share his top tips for publishing accessible written content. Jack will share how to get your team on board and ensure you’re creating content relevant to your audience and highlights the importance of gaining feedback/testing. Register now: Top…

  • 25Mar

    Being Inclusive in Public Involvement (PI) in Health Research

    In this article, published by Equality, Diversity and Inclusion in Science and Health (EDIS), Dr Bella Starling (Director of Public Programmes at Manchester University NHS Trust) shares her experience and explains the rationale and process behind the creation of the NIHR INVOLVE guidance ‘Being Inclusive in Public Involvement (PI) in Health Research. Things to think…

  • 25Mar

    I’d share any data to stay alive longer’: the progress of digital public services

    This article in the Guardian, highlights PIF member, Michael Seres, who became the 11th UK person to undergo a small bowel transplant.  He started blogging about his experiences and now uses social media to develop global online communities of patients, and uses WhatsApp, Facebook and Skype to interact with healthcare professionals. Technology has the potential…

  • 25Mar

    Reflections of a Patient Director

    Patient Director, David Gilbert, highlights the work of the ‘Sussex Model of Patient and Carer Partnership’ as one that rests on a triangle – between the role of Patient Director (at executive level), the Patient and Carer Forum (at corporate governance level) and the Patient and Carer Partners (involved in improvement and governance). It is…

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