PIF is a not for profit company, limited by guarantee. It is funded by membership subscriptions, events and project funding. The organisation is governed, managed and advised as follows:
Non-Executive Directors of the Patient Information Forum help to ensure the organisation operates effectively, and together with the Chair, are expected to oversee the development and implementation of the business plan through their contribution to strategy development, objective setting, and robust financial and performance oversight and governance.
The current members of the PIF Board can be viewed below:
Sue Farrington, Chair
Sue Farrington joined the PIF Board as Chair in 2014.
Sue is currently Chief Executive of Scleroderma and Raynaud's UK having recently led the merger of two charities.
She has over 25 years’ experience in senior leadership roles, working across the private, public and voluntary sector.
Anne Ballard, Non-Executive Director
Anne was appointed to the PIF Board in September 2016.
Anne has over 25 years’ experience within the pharmaceutical industry and now runs her own consultancy business.
With over 10 years’ experience as a board member, she brings a wealth of experience in setting strategy and delivering measurable improvement in outcomes.
Graham Parker, Non-Executive Director
Graham was appointed to the PIF Board in September 2016.
After a career in manufacturing and international sales, Graham went on to use and develop his business and management skills in the public and charity sectors.
He has held a number of senior management positions, predominantly within social care and community service provision.
Jacquie White, Non-Executive Director
Jacquie was appointed to the PIF Board in October 2017.
Jacquie has over 20 years experience of working in and supporting health and social care teams to improve the quality of services for and with their local population.
Jacquie is currently the Deputy Director for Long Term Conditions, Older People and End of Life Care in NHS England.
The Operations Team is responsible for the day to day running of PIF.
Nicole Naylor, Head of Operations
Nicole has worked as part of the Operations Team at PIF since November 2009.
In January 2018, she became Head of Operations after holding the role of Joint Head of Operations since October 2014.
Sophie Randall, Projects and Partnership Manager
Sophie joined PIF in February 2018 as Projects and Partnership Manager.
She is experienced in forging partnerships with between advocacy groups, industry and professional bodies to meet genuine information need and enjoys facilitating consensus.
The Advisory Group of the Patient Information Forum has been established to ensure that the interests of health information professionals, from a range of sectors, and other groups with an interest in patient information, are fully taken into account within the work of the Patient Information Forum.
The PIF Advisory Group is a collection of individuals who bring unique perspectives and expertise, in order to more effectively guide the work of PIF and play an active role in helping PIF achieve its vision.
The current members of the Advisory Group can be viewed below:
Kate Betteridge - Director, Neil Betteridge Associates
Kate has almost 20 years’ experience working with people with long-term conditions to help empower them to make informed choices about their health and lifestyle.
She has extensive experience of involving service users in the development of information.
Gary Birkenhead - Improvement Adviser, Macmillan Cancer Support
Gary has worked in a variety of roles in the information, research, public policy and programme development departments and the NHS.
In 2013 he joined the Information and Support Department at Macmillan Cancer Support as an Improvement Adviser, working with their cancer information and support services across the UK.
Louise Coghlin - Freelance Writer, Editor and Project Manager
Louise is a freelance writer and editor specialising in life sciences, health and illness.
She has a degree in biochemistry and over 20 years' experience working for publishers, charities, drugs companies and communications agencies.
Sarah Hennessy - Librarian, South West Yorkshire Partnership Foundation Trust
Sarah has worked in consumer health information since 2000.
She is currently a Librarian in a Mental Health Hospital, specialising in mental health information but also supporting the Trust and the local community with health promotion on all aspects of health and well being.
Linda Cowie - Independent Consultant
Linda is a Pharmacist by training, but has spent 25 years working in healthcare marketing and communications for various pharmaceutical and nutritional companies and healthcare communication agencies.
Katrina Glaister - Clinical Governance Facilitator, Salisbury NHS Foundation Trust
At Salisbury Hospital, Katrina works for the Quality Directorate where she has raised the profile of patient information throughout the Trust, devising a rigorous quality assurance process for patient information.
Chiara De Biase - Head of Patient Experience, Anthony Nolan
Chiara is accountable for the delivery of patient information and support as well as funding NHS posts, and developing clinical and supportive care pathways for patients before and after transplant, including palliative and end of life care.
Joanna Dundon - National Clinical Informatics Lead, NHS Wales Informatics Service
Joanna has been working at the NHS Wales Informatics Service since 2008.
In September 2016 she begun work to develop an interactive digital patient portal to access information and resources from NHS Wales, and a personalised patient platform.
Carol McCambley - Stakeholder Engagement Manager, NHS 24
Carol has worked in various roles within NHS Scotland since 2007.
Her interest and focus is on digital health and care information provision for Scotland, engaging users to ensure provision meets their needs.
Rachael Middle - Speech and Language Therapist, Southern Health NHS Foundation Trust
Rachael has worked in the NHS as a Speech and Language Therapist since 2007.
Rachael currently works with adults with learning disabilities and has a particular interest in embedding the Accessible Information Standard.
Dr Knut Schroeder
Knut is a GP at the Concord Medical Centre in Bristol and Honorary Senior Clinical Lecturer at University of Bristol.
Knut is Founder and Director, Expert Self Care Ltd.
Enid Povey - Clinical Lead, NHS Digital
Enid is currently Clinical Lead for nhs.uk (NHS Choices). Within this role she is responsible for the governance processes and assurance to ensure the website content and information remains current, safe and effective.