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  • 30Mar

    Do informed consent documents for cancer trials do what they should?

    People approached to take part in cancer trials find patient information leaflets about the trials too long and difficult to understand, warns a study, which is informing new guidance on consent procedures. Researchers found that patient information leaflets (PILs) function to satisfy purposes other than their manifest function as a decision-facilitating tool. PILs are being made to serve purposes both as a prospectus and as a contract. Though PILs have value for some patients, most do not recognise these documents as operating primarily in their interests.

  • 30Mar

    Putting people first through shared decision-making and collective involvement

    Involving and engaging patients and the public in decisions about their health and care improves outcomes, strengthens individual well-being and contributes towards more cohesive and healthier communities. And collectively involving patients and the public in the design and delivery of health services improves services and care and engages citizens as taxpayers to contribute to decisions about how resources are used. This paper from the NHS Confederation explores what it really means to put people first when commissioning and providing services, and sets out what we know about the benefits. It ends with a selection of useful case studies that demonstrate where shared decision-making has already made an impact.

  • 30Mar

    Sir John Oldham sets out three reasons to promote self-care

    In an article in this weeks Pulse, Sir John Oldham lays out the clinical, organisational and systemic reasons to commission more self-care and co-management schemes. Sir John sets out some of the context for self care and the potential benefits for the patient and the health services. He advocates training for health professionals in working with patients to improve self care and highlights three key benefits of effective self care; clinical, organisational and system wide. He also states that the evidence base is increasingly strong that patients who understand and help manage their own conditions have better clinical outcomes.

  • 30Mar

    Prime Minister’s challenge on dementia commits to better information for patients

    The Prime Minister’s challenge on dementia was published this week. It sets out an ambitious programme of work to deliver major improvements in dementia care and research by 2015, building on the achievements of the existing National Dementia Strategy. There are two key commitments that relate to information – promoting local information on dementia services, to ensure that all people receiving care and support get better information to support their care choices, and running an awareness-raising campaign from autumn 2012.

  • 30Mar

    NHS Patient Feedback Challenge to identify, share, spread and implement patient experience work

    Recent research in to What Matters to Patients set out some strong arguments for how the NHS can improve services and patients’ experience of healthcare, and told us that patients care about their experience of care as much as clinical effectiveness and safety. This is why the NHS Institute for Innovation and Improvement are launching the NHS Patient Feedback Challenge, to identify, share, spread and implement your excellent patient experience work across the NHS. The Challenge is designed to provide a financial reward for those who develop a culture which rapidly identifies areas for improvement in experience and implements the best ideas.

  • 30Mar

    The significance of the Health and Social Care Act’s clauses on patient and service user involvement

    National Voices this week published a new briefing on the meaning and significance of the Health and Social Care Act’s clauses on patient and service user involvement. As the Act becomes law the duties on the NHS Commissioning Board and clinical commissioning groups include that “The Board must, in the exercise of its functions, promote the involvement of patients, and their carers and representatives in decisions which relate to the prevention or diagnosis of illness in the patients, or their care or treatment.

  • 30Mar

    Clinical and cost effectiveness of mobile phone supported self monitoring of asthma

    The objective of this research was to determine whether mobile phone based monitoring improves asthma control compared with standard paper based monitoring strategies. Participants were centrally randomised to twice daily recording and mobile phone based transmission of symptoms, drug use, and peak flow with immediate feedback prompting action according to an agreed plan or paper based monitoring. There was no significant difference in the change in asthma control or self efficacy between the two groups. The numbers of patients who had acute exacerbations, steroid courses, and unscheduled consultations were similar in both groups, with similar healthcare costs. Overall, the mobile phone service was more expensive.

  • 30Mar

    Event: A Practical Guide to Measuring and Monitoring Patient Experience

    Chaired by Sophie Staniszewska Guideline Development Group Chair The NICE Quality Standard for Patient Experience in Adult NHS Services, this conference provides an important update on patient experience with a focus on the new NICE quality standard including how it was developed and how progress will be monitored. Topics include the NICE quality standard on patient experience and implementing the National Framework for Patient Experience. The event takes place in London on 17 September 2012. PiF members get a 15% discount.

  • 23Mar

    Consultation on Welsh language services in health and social care

    The Welsh Government recognises that for many Welsh speakers, being able to use their own language is likely to be fundamental to their care. For this reason it wants to strengthen Welsh language services within health, social services and social care.More than just words is the Strategic Framework for Welsh Language Services in Health, Social Services and Social Care. The Welsh Assembly is looking for your views on the Framework. The consultation ends on 30 April 2012.

  • 23Mar

    PiF 2012 conference; just 5 weeks left to book your place!

    Choice – valueless without meaningful information is PiF’s seventh Annual Conference, taking place this year at the Thinktank Science museum in Birmingham. This year, keynote sessions bring you up to date with national information strategy and shared decision making. Workshops include those that show you how to develop information that enables and how to produce information that aids self-management. You will hear from speakers that can bring you the latest work on the Information Standard, the development of Information Prescriptions and evaluating information. The conference concludes with a crucial review, and debate, around what constitutes good quality consumer health information. Lunchtime Show and Tell sessions this year look at social media, with three 5 minutes sessions on using Twitter, using Facebook and Blogging. Just 5 weeks remain until conference, don’t leave it to the last minute to book!

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