An independent group of experts has been established to help develop a new strategy for improving care for children and young people. The ‘Children’s and Young People’s outcomes strategy’ will focus the health service on improving health results for children, including those needing primary, hospital and urgent care, and children with long-term conditions. It will identify health issues that matter most to children and young people, and how a modern NHS will meet their needs. The Children’s and Young People’s Forum, which is designed on the NHS Future Forum model, will carry out a three-month period of engagement with appropriate stakeholders before submitting its recommendations to the Government later in the year.
Thousands of charities in the UK are aware of social media, but aren’t sure what it can do for them. Even more are engaging with their audiences on social networks, but want to know how to develop and optimise their activities. CharityComms has put together a two part Guide to Social Media for Charities. Part One is aimed at those just getting started, with Part Two written for charities who are actively using social media and want practical advice on taking their comms to the next level of success.
Transforming Patient Experience: the essential guide, a publication from the Patient Experience Network has been launched this week. It is suitable for anyone with designated responsibility for improving patient experience – either as a provider of services or as a commissioner. It contains practical guidance and covers the crucial aspects of making the case for a patient experience improvements, helping leaders and staff to improve patient experience and commissioning for a positive patient experience.
Research: A systematic review of interventions to enhance shared decision making in routine clinical practice
This systematic review evaluates the effectiveness of interventions to improve health professionals’ adoption of shared decision making in routine clinical practice, as seen by patients. The authors concluded that multifaceted interventions that include educating health professionals about sharing decisions with patients and patient-mediated interventions, such as patient decision aids, appear promising for improving health professionals’ adoption of shared decision making in routine clinical practice as seen by patients.
Research: Direct to consumer Internet advertising of statins offer poor safety and side-effects information
Tighter controls are needed over the online advertising of prescription drugs, researchers have concluded, after finding poor safety and side effects information on a number of websites selling statins to the public. Researcher evaluated a sample of Internet sites advertising statins for sale to the general public and found that the quality of information and information of the safe use of medicines was generally poor. More than 90% of sites didn’t list contraindications and most websites presented a chaotic and incomplete list of known side effects. Another important safety issue came to light during the study with the discovery that eight of the websites offered free prescription only medicines for erectile dysfunction with every statin purchase.
New resources to help pharmacists manage patients with persistent pain have been developed by UCL School of Pharmacy and the United Kingdom Clinical Pharmacy Association. The resources include two “Talking about pain” guides — one for pharmacists and the other for patients. The document for patients is designed to help them think about their pain and how it impacts on their life, and the one for pharmacists focuses on how to interpret the information patients share about their pain.
How to deliver high-quality, patient-centred, cost-effective care: Consensus solutions from the voluntary sector
This Kings Fund publication is the collective effort of ten of the leading health and social care organisations in the voluntary sector. Each organisation submitted evidence to The King’s Fund, which independently analysed and assessed each submission and worked with the organisations to establish a common position. Together they have identified the five key themes that the health and social care system must embrace to be sustainable and to ensure quality. The themes include patients engaged in decisions about their care, supported self-management and emotional, psychological and practical support. The report includes a section on information.
The objective of the research was to explore the perspective and experiences of disabled young people with degenerative conditions as they face significant medical interventions and engage in decision-making processes. Researchers found a complex and diverse picture of decision making. How each young person framed their decision was important. Recognizing this diversity and the importance of emerging themes, such as living a normal life, independence, fear of decisions viewed as ‘irreversible’ and the role of parents and peers in decision making highlights that, there are clear practice implications including, active practitioner listening, sensitivity and continued holistic family working.
In November 2011, the Royal College of Physicians hosted a workshop to explore issues surrounding
shared decision making (SDM) in clinical practice. Their report, Shared decision making, captures some of the learning from the event and outlines key themes discussed and debated on the day. The workshop was planned in partnership with the Health Foundation and The King’s Fund. The RCP invited key theoreticians in the field of shared decision making, and leaders in national programmes delivering partnership approaches to care, plus representatives from the medical royal colleges and specialist societies, to explore what this means both for patients, and for clinicians and their practice.
Research carried out by the think-tank, 2020Health, has revealed a dramatic increase in the amount spent by NHS Trusts on translation and interpretation services. The report, Lost in Translation, investigates NHS spend on translation services, the overall costs as well as the individual areas of spend. Research was conducted by 2020health through Freedom of Information (FOI) requests sent to 247 NHS Trusts. The report recommendations include translating materials into easy read English rather than other languages, and make these materials available across all sites and creating a central repository of information that has already been translated into other languages so that it is readily available to all NHS sites.