From influencing behaviour and raising awareness to recruiting activists, donors, volunteers and fundraisers – there’s no doubt that social media has radically transformed the ways in which charities make connections and develop meaningful relationships. The question today is not whether we should be engaging with our audiences through social media, but how we should be maximising its potential. With a mixture of practical breakouts and thought-provoking plenary sessions this one day CharityComms conference will bring together some of the best brains in the charity world to explore the latest trends, case studies and innovations. The conference takes place on 21 March 2012 in London.
There is quite a bit of evidence about best ways to convey risk information to help with policy or clinical decision making. Pictographs and bar graphs along with numbers and descriptions are considered best. Some emerging research suggests that some elements will help some patients more than others (for instance people with low numeracy). The Mayo Clinic shared decision making resource centre has and article this week about communicating risk using visual means, including ten steps to better risk communication.
Research: Effects of a web-based intervention for adults with chronic conditions on patient activation
A vital role of the health care system is to develop informed, engaged individuals who are effective self-managers of their health. This research is to explore the effect of a Web-based intervention on the patient activation levels of patients with chronic health conditions, measured as attitudes toward knowledge, skills, and confidence in self-managing health. Results suggest that Web-based interventions increase patient activation and have the potential to enhance the self-management capabilities of the growing population of chronically ill people. Activated patients are more likely to adhere to recommended health care practices, which in turn leads to improved health outcomes. Designing Web-based interventions to target a specific stage of patient activation may optimize their effectiveness.
This report is designed to assist the NHS in Wales in delivering high quality and accessible services to people with sensory loss in Wales. The report steering group identified three main areas where services needed to improve, including communication – ensuring information (both written and face-to-face) is accessible and delivered in a way that meets the needs of people with sensory loss. Of specific note was the need to improve communication around access to appointments.
This is a free event on Monday 23rd April 2012 at Park Plaza Riverbank London, where there will be an opportunity to hear from the Secretary of State for Health, people who are leading the way in patient experience and some exciting speakers from other sectors. The event focuses on creating wholly patient focused organisations and a fully integrated patient experience measurement system that leads to continuous improvement cycles.
In October 2011 the NHS National Quality Board (NQB) agreed on a working definition of patient experience to guide the measurement of patient experience across the NHS. This framework outlines those elements which are critical to the patients’ experience of NHS Services. The framework includes ‘Information, communication, and education on clinical status, progress, prognosis, and processes of care in order to facilitate autonomy, selfcare and health promotion.’
Many people worry that they are at a greater than average risk of developing breast or ovarian cancer because of their family history. Macmillan Cancer Support offers an online personal education and risk assessment tool that can help – OPERA. The tool is based on the NICE guidelines for Familial Breast Cancer. It asks the user specific questions about their personal and family history of breast and ovarian cancer. It then summarises their answers, gives them a ‘personal assessment’, and suggests what they might want to do next. The assessment includes personalised information and support about their inherited cancer risk.
Since 2008, patients have been able to post comments on and rate hospitals using the NHS Choices website. The system’s proponents suggest that it helps patients to choose the best services, but no previous study has investigated whether these online ratings are related to clinical measures of healthcare quality, such as mortality rates and incidence of hospital-acquired infections. Researchers at Imperial College London examined 10,274 ratings of all NHS acute hospital trusts in England. They found that hospitals with better patient ratings tend to have lower death rates and lower readmission rates. Hospitals rated by patients as being cleaner have lower rates of MRSA infections.
Patients continue to report improvements in aspects of care that matter most to them, and 84 per cent of patients rated their experience as excellent or very good, according to the results of the 2011 Patient Experience Outpatient Survey. The results published this week show that more patients are being treated with respect and dignity and felt they were involved in decisions about their care and treatment and in the amount of information given to them about their treatment. However, the results also show that staff need to improve the way they provide information to patients about areas such as the risks and benefits of treatment, why tests are needed and the purpose of medication and side effects.
The Chief Medical Officer’s National Blood Transfusion Committee ‘Patient Involvement Working Group’, have developed new information for patients and the public on blood transfusions. The resources include leaflets on why blood transfusions are needed and information for parents and guardians outlining what to expect if a baby needs a blood transfusion.