PiF consultations, submissions and reports
PiF members are asked by organisations to take part in national
consultations, to give a consumer health information perspective to
discussions and policy development and to send representatives to
meetings on relevant health issues.
Reports and submissions that PiF has contributed to are listed below, with documents where relevant.
Response to the Department of
Health's (DH) Information Revolution and Choice and Control
consultations.
January 2011
The submission was informed by a PiF survey
of NHS Trust members in October 2010, a survey of all PiF members about
the two consultation documents in November 2010, an event held on 1st
November with NHS Trust information colleagues in Sheffield (attended
by Kathy Mason), discussion with our Strategy Group and Advisory Group
members, and an event for PiF partners which was held under Chatham
House rules on 8th December 2010 (attended by Kathy Mason and Marlene
Winfield from the DH).
Our central comment is that the
provision of high quality Consumer Health Information is potentially
neglected in the two consultation documents, as it currently is in many
parts of the NHS. The main focus of the Information Revolution
consultation is data and informatics. The main focus of the Choice and
Control consultation is choice of provider. Both of these are of
importance to patients and carers, but less so than the provision of
high quality information, integrated into the care pathway and used to
support shared decision making about care and self-care. This is
covered to some extent in both documents, but has the potential to fall
into a hole between them when it comes to implementation.
We
urge the DH to rectify this in the strategies, when published, and give
consumer health information dedicated attention. Our vision is that
high quality consumer health information is available to all, enabling
people to better manage their own health and be fully involved in
decisions about their care.
The submission sets out a 'Consumer health Information Charter' which states the following:
- Information is an intervention that impacts health & wellbeing
- Information must adhere to quality standards
- Information provision must be integrated into health & care delivery
- Information must be delivered in a supportive environment
- The impact of information provision must be measured
The submission also discusses the areas in which current information provision falls short, includes some practical solutions and outlines the top priorities for the Government.
To read PiF's submission in full click here.
All Party Parliamentary Group on Primary Care & Public Health Inquiry
October 2008
The aim of this inquiry was to find out whether the implementation
of policies on public health information has followed rhetoric and to
determine whether we are getting any closer to an informed, engaged
public making the right health choices for themselves and their family
members. The PiF Management Group wanted to ensure that the voice of
health information professionals was heard and therefore responded to
the consultation with PiF member views.
Click here to see the report submitted by PiF
Click here to see the final APPG report
MHRA and PiF meeting
November 2008
A consultation session to help establish what the Medicines and Healthcare Products Regulatory Agency’s priorities should be over the next five years or so. The MHRA is responsible within the UK for ensuring that medicines and medical devices work, and are acceptably safe.
Click here to see a copy of the report
Page last edited: 29 September 2011
