Annual Patient Information conference: ‘Information and support – a service in its own right’

Thursday 2nd May 2013,

The St. Johns Hotel, 651 Warwick Road, Solihull, Birmingham, B91 1AT.

Within The Power of Information strategy is an assertion that ‘Access to good quality information, and being supported to use it effectively, is an important health and care service in its own right.’ An essential service in its own right - it’s a powerful statement, but what does it mean and how do we deliver the vision? The eighth Annual Patient Information conference on 2 May 2013 explored how that service might look and showcased some of the work that is beginning to make the vision a reality.

Our 2013 conference was all about the fundamental components of delivering high quality health information, with a look at policy, health literacy and commissioning information. Bringing together experts from across voluntary, NHS, and commercial sectors, the scene was set by putting the patient view of information at central stage.

Keynote sessions brought attendees up to date with the national information strategy in England and Scotland. Delegates heard about important projects such as the development process for new information on cancer screening, the lessons learned from Information Prescriptions and ‘the case for information’ - bringing together the health, economic and patient benefits of providing information. Breakout sessions focused on questioning and discussion, exploring the core topics of evaluation, cost effectiveness, dissemination and reaching your audience.  You can download the programme from the day here: PiF Conference 2013 FINAL, and presentations and notes from the Group Workshops below:


  • Rolling presentation: Rolling Presentation
  • Introduction, welcome and PiF update Sarah Smith, Operations Director, Patient Information Forum: Sarah Smith - morning
  • Shared Decision Making: A patient’s view Steven Cook, Gastroenterology Patient: Steven Cook
  • Delivering the NHS Mandate – Increasing Patient Involvement - Luke O'Shea, Head of Patient Participation, NHS England: presentation unavailable
  • Informing and supporting patients in Scotland: NHS inform and beyond - Dr Margaret Whoriskey, Scottish Government Joint Improvement Team: Margaret Whoriskey
  • Making the case for information Carol Grant, Director and Paul Treadgold, Associate, Grant Riches Communications: Carol Grant & Paul Treadgold
  • Medicines information fit for the 21st Century Jan MacDonald, Head of Patient Information Quality, MHRA: Jan MacDonald
  • Supporting the commissioning of information Helen Rowntree, Director of Strategy and Digital Media, NHS Choices: Helen Rowntree
  • Show and Tell - Show and Tell - what’s new at PiF - Mark Duman: Mark Duman
  • Lessons from Information Prescriptions  Ruth Carlyle, Information and Support Policy Lead, Macmillan Cancer Support: Ruth Carlyle
  • Health literacy: How information producers see it Annie Gilbert, Patient Research Manager, MSD (Merck Sharp & Dohme): Annie Gilbert
  • Developing information for cancer screening Professor Amanda Ramirez, Director, Informed Choice about Cancer Screening, King’s Health Partners: Amanda Ramirez

Group work sessions

  • Evaluating the impact of your information
    Beth Murphy, Head of Information, Mind and Sarah Smith, Operations Director, Patient Information Forum
    Sarah Smith & Beth Murphy
  • Being cost effective 
    Leona O'Reilly, Chief Executive, NDR-UK (Nutrition and Diet Resources) and Katrina Glaister, Quality Directorate Facilitator, Salisbury NHS Foundation Trust
    PiF Being Cost Effective Workshop notes


We are sorry but registration for this event is now closed.

Please contact us if you would like to know if spaces are still available.